Musing to my sister of my difficulty deciding on what to write, she suggested I write about nothing. I could write about anything; too broad. Nothing; too narrow.
Where does that leave me? I guess I’ll try writing anything about nothing in particular. But what does that look like? How would it sound? What can I show that you would want to see?
Samuel Clemens, later known as Mark Twain was born in Florida, Missouri on November 30th 1835. He died on April 21st 1910. Both his birth and death coincided with the perihelion of Halley’s Comet. You can read a short, but interesting bio here. Do you know how he came about with the name Mark Twain? I’ve always been intrigued by these tidbits of trivia.
Writing about domestic politics and issues, or world events, is too fraught with diverse and conflicting opinions to share my thoughts and opinions thereof. It’s a Mad, Mad, Mad, Mad World! Different subject, but it sounds right.
I’m having even more trouble than usual getting into the holiday spirit. I’ve never been good at it on my own, but Pam made it exciting and fun by her joy and enthusiasm, and her loving, giving nature. I don’t think I’m a scrooge. I don’t use any form of the term “bah, humbug”, but I suppose that I come across that way sometimes.
By this date of the year, we would already have at least one card table set up with scotch tape dispensers (Yes, multiple. Got to have the double-sided variety too.), ribbon spools, straight and squiggle-cutting scissors, you get the idea. And it’s not just the big gifts. It’s the little “stocking stuffers” that often delighted her most.
I left home with four inches of snow on the ground. It was a deep and wide swath, as I was through Missouri and into southern Illinois before the last traces disappeared in the fields and in the wooded hills. Enjoying the landscape and topography along the highways and byways as I drive is still a life’s little pleasure for me. I am constantly reminded of how much Pam enjoyed the scenery and we so enjoyed experiencing our travels together.
I also realized on Thursday the extent to which caring for Pam during her illness and grieving for her (and myself) after her death, zapped my energy. Now, however, I am being energized, and I like to think it is her universal energy, through pleasant memories of her, and of our life together. I recognize how her energy enlivens me still. It doesn’t make the pain go away, but I think it does put salve on the wound.
I hope to have something specific to write about next week, rather than anything about nothing. I will try to convey the experience of transitioning my Mother from home care to memory care. But it may be too raw to put into words yet at that time. Meanwhile I continue to consider topics to write about because I enjoy the writing. And based on reader responses, you enjoy it too.
Well, I kind of wrote about anything. But it turned out not to be about nothing. Now that I think about it, that’s difficult to do. If you get nothing out of the reading but enjoyment, that’s something too. In fact, that’s everything my writing is about. And that’s not nothing either.
I was playing this song, Behold – Psalm 133, during practice last weekend within the context of Thanksgiving. Thinking about family, thankful that I will be with them on Thanksgiving. I thought of so many things I am thankful for as the holidays approach again this year. Consider playing the song while you read the rest of this post.
The season comes with some trepidation as I navigate through another round of celebrations without Pam. Thanksgiving today, and our 27th wedding anniversary next Tuesday loom largest. But transitioning Mother to memory care, Christmas/Channukah holidays, followed by Mom’s 99th birthday in January, all add emotional weight to the season.
Yet, I am able to be thankful for my family, my health, my neighbors and friends. I like where I live and have settled into an as yet unfamiliar lifestyle – enjoying retirement! I am thankful for my music and my songs and how they might positively impact others’ lives. And Pam follows me on this journey. For she is always in my mind and in my heart. But I wish she was here to share! I miss her.
Behold – A Little Story
I am working on a short story that will include some of this history. Here, I want to share the origins of the music behind this song of a Psalm.
By the time I got to college I was totally disillusioned with my Jewish upbringing. I was a heavy pot smoker and did some other mind-altering drugs as well. I read books of Eastern religions, took Yoga classes, and enjoyed my philosophy class more than any other.
During the fall semester of my Sophomore year I met some people who would facilitate the most significant change in my life. At that time, Navigators was a college campus ministry who’s origins were with the US Navy. I met a young man and a mentor who would play pivotal roles in my conversion to Christianity and total upheaval of my life. But that’s part of the bigger story.
After my being “born again” during spring semester, I headed home to Atlanta, where my parents had moved the previous year, with the weight of wanting – needing – to tell my family about my “good news.” My angst was validated by the icy reception that my good news evoked in my parents and siblings. I found myself alone, with little guidance and lots of questions.
I read. Mostly the New Testament that I was almost totally unfamiliar with. But it made so many references to the Old Testament that I was very familiar with! I read Proverbs, and I read the Psalms. Understanding that the Psalms were put to music a few thousand years ago, I decided to try my hand, developing music for three.
Psalm 38 is a plea for forgiveness and healing. My interpretive song begins with verse 21, “Do not forsake me, oh Lord. Oh, my God, be not far from me.” I really felt it at the time, and enjoy the music to this day, though I don’t play it often. I just realized that it did not make the Catching Up On Life album. Interesting.
Psalm 24 follows the famous “The Lord is my shepherd, I shall not want” verse of Psalm 23. It’s focus is totally different. It ascribes ownership of everything to God and describes the totality of devotion required to be with God. Beginning with, “The earth is the Lord’s, and the fullness thereof”, I rarely play it anymore.
Psalm 133 I call “Behold.” It is a regular part of my repertoire. I enjoy the sound and the sentiment. It’s easy listening and presents an attitude of thankfulness.
I find it interesting that, as with many artists, dark times often influence creativity. Though I did not write the lyrics, I hope that the music does them justice and is true to the original author’s intent. (I also wish the recordings were better 😉 )
So I am thankful today for everything I have. Everything I have had and lost. For those who have touched me with their lives, and for those lives I have touched.
In fact, I was sitting comfortably, sipping my morning coffee, listening to SiriusXM radio Deep Tracks (Channel 308) from my stereo speakers connected to the TV, when The Moody Blues song asked just that question.
Take another sip my love and see what you will see, A fleet of golden galleons, on a crystal sea. Are you sitting comfortably? Let Merlin cast his spell.
Ride along the winds of time and see where we have been, The glorious age of Camelot, when Guinevere was Queen. It all unfolds before your eyes As Merlin casts his spell.
The seven wonders of the world he’ll lay before your feet, In far-off lands, on distant shores, so many friends to meet. Are you sitting comfortably? Let Merlin cast his spell.
Raymond Thomas
I know I’ve touted the beauty of The Moody Blues music previously. This is another example of how, over many years, their songs continue to speak to me or reflect my current lot in life. Sitting comfortably is something I have rarely been able to do for several years. Yet here I was. Feeling rested. Feeling strong. Aware of my loss, yet not consumed by it at the moment.
Then comes this mystical music and tantalizing lyrics. I’m also a big fan of J.R.R. Tolkien’s Middle Earth fantasies, and of the stories of King Arthur’s court. Raymond Thomas sets the lyrical stage while The Moody Blues weaves its musical spell.
Several challenges face me in the coming weeks. In addition to the traditional holiday season and what would have been our 27th wedding anniversary, my siblings and I are preparing to transition our nearly 99-year-old (January 7, 2024) Mother to a memory care facility in the middle of this time. Sitting comfortably for a few minutes, listening to some of my favorite music that mirrors my emotions, is a true ethereal gift.
Also good is my recognition of such gifts. It is easy, as the days grow shorter and colder, to sink into the gloom with the season. In deed, last year at this time I was pretty much an emotional mess! I’ve been concerned about how I would fare this winter. But though it has not actually arrived yet, my comfortable chair and easy listening offer a glimmer of hope to me and to the season.
I will be with various geographically distant family members over the holidays. Last year I worried whether I could remain emotionally stable – for good reason. I was only marginally successful.
I still anticipate some difficult moments. Last year my family was instrumental (no pun intended) in my coming through the darkness of my grief. This year I am hopeful to enjoy them and celebrate them along with the holidays. I am not a religious person, though I have delved deep into faith and dogma. Nor am I a fan of the commercialization of the holidays. But I do appreciate people. I love people. I love family. And I love our common hopes and dreams for ourselves and each other.
So here I am, sitting comfortably in my office chair, writing these optimistic and hopeful words. I don’t really care who casts the spell. But if it continues to be a good one, please don’t break it!
Tomorrow (Sunday, November 12, 2023) marks the 18 month anniversary of Pam’s passing. I had no concept of the emotional challenges that I would endure nor how my life would change without my other half. I still love Pam and am in love with her. This fact has given me strength to reshape myself into a new life. It is transformed and is still transforming. I can no longer be what I thought I would be with Pam. I can only go on being me without her. Yet, knowing she will always be part of me. In doing so, I am confident that, even with my fits and sputters, she would be happy that I am.
I can sometimes now sit comfortably with that knowledge.
Just one more mornin’ I had to wake up with the blues
Greg Allman
Thursday morning was just like many, feeling the emptiness of a moment I used to enjoy, saying good morning to the one I love. But also like some other mornings in the past year and a half, I was singing Dreams in my head. Not only do the lyrics speak to me at some level, the music is entrancing.
Just one more mornin’ I had to wake up with the blues Pulled myself outta bed, yeah Put on my walkin’ shoes
Went up on the mountain To see what I could see The whole world was fallin’ Right down in front of me
‘Cause I’m hung up on dreams I’ll never see, yeah, baby Ah, help me, baby Or this will surely be the end of me, yeah
Pull myself together Put on a new face Climb down off the hilltop, baby Get back in the race
‘Cause I’m hung up on dreams I’ll never see, yeah, baby, yeah Ah, help me, baby Or this will surely be the end of me, yeah
Pull myself together Put on a new face Climb down off the hilltop, baby Get back in the race
‘Cause I’m hung up on dreams I’ll never see, yeah, baby, oh Ah, help me, baby Or this will surely be the end of me, yeah
Greg Allman
I am not a blues artist. I am a fan of some southern rock, The Allman Brothers in particular. I was fortunate to have seen them multiple times in the early 70’s. Pam’s brother, Dave, gifted me with prints of Duane and Greg Allman that he meticulously crafted (Dave German Art). So many of the great guitar players and song writers of my generation learned their trade by listening to, and playing, the blues. But I am not writing this about that genre, rather, how the lyrics and music express how I feel.
Blue is how I feel these days. It’s not all I feel. I have a love of life – of my life – even as it so deeply hurts to live it without Pam. I enjoy my surroundings. I enjoy being and interacting with family and neighbors. I might even be making new friends!
Many routines are now metamorphized extensions of those we used to share. Which, of course, make me sad that I perform them alone. Even such things as doing the dishes or making the bed leave me feeling empty and blue. But often I also smile that I still perform them. Not necessarily exactly as she would have or how we might do them together. But they, as she, are part of the fabric of my being.
I am crying more often again these days. I miss Pam so much. Sure, life goes on. Much of what I am is good, better having known her and been loved by her. Sadness engulfs me without warning. Any of the many things such as those mentioned above trigger its onset. Such a paradox. Living and loving life. I rue Pam’s death to the depths of my being.
Last July I wrote a note of expression, “Letting go means giving up on all your dreams.” Sharing that with someone close to me, she suggested that I’m not giving up all my dreams, only those I had for Pam and me together. That may be true. They are/were more important than mine alone. And those I still cling to, such as creating and performing my music, are emptier now without her. I guess I’m still “hung up on dreams I’ll never see.” But it surely won’t be “the end of me.”
I live without Pam, and with her, and in honor of her. Yet, I dream.
Our daughter and her partner came for a visit on their way back from a seminar in Indianapolis. Please direct your thoughts and prayers for Greg’s daughter, Val, as she fights a medical battle!
Knowing of this visit in advance, Kelley and Greg brought a covered pickup truck to take the last of the boxes filled with Pam’s stamping materials and a bunch of holiday decorations I no longer want, but may have sentimental value to other family members. I prepared a spread of smoked brisket, pulled pork, and baby back ribs, with sides of beans, corn, and Texas toast. Way more than we could eat, but they took home the leftovers. I had the rare pleasure of preparing the meal and having people visit!
Just a few days prior, I considered they might be able to use some of the extra furniture, specifically, Pam’s office chair and her recliner. The ones matching mine. I’ve been looking at it with trepidation for over seventeen months now (more on that a bit later). As Kelley and Greg hauled boxes from downstairs, I dismantled the recliner. A wave of sadness gripped me (and still does as I write this), realizing another loss related to losing my dear Pam. I broke down crying even before we had a chance to get the chair out the door! So hard to let go, but I knew I had to.
Then, off they went. And, due to my nature, I could not let things remain in disarray. Get out the vacuum. Rearrange. Tidy up. Good for my psyche. More crying. I found myself saying, “I’m not getting rid of ‘you’, I’m just getting rid of stuff.” And don’t worry. There are many reminders of Pam still here. Many things we bought or created together. Things that meant a lot to her. Things I still use and enjoy every day.
Having completed my rearranged “therapy”, I took a picture and sent it to Kelley so she could see the change. I also sent it to my sister by text, knowing she would like to visualize the new configuration. She replied, “All yours now.” I must admit that it stung to read those words. But I know she meant well and, reflecting later, I realized that it is true. The transformation of this house, from ours to mine, is pretty much complete. Basically, every room now has my personality stamped on it. I know not what additional changes I will make. Hopefully, I won’t add too much “stuff!”
I took a walk around the neighborhood on that sunny, cool, autumn Sunday afternoon after all of the commotion. It dawned on me that last Thursday was October 12th, seventeen months since Pam died. For the first time, a monthly anniversary passed without my acknowledgement. Another milestone – one that passed without notice!
The evening was filled with sorrow for missing Pam! I sat in my chair and cried. I may be further along some continuum of recovery, but the pain is still sharp when it rears up. I miss her nearly every hour of every day. Yet I go on with my rearranged life alone in my rearranged house. Again I say, Pam wanted it this way. Every time I notice something of hers, something of ours that we acquired and enjoyed together, when I do things around the house the way she would (and obviously “trained” me), I have to say, “I love you, Pam.” Rearranged life or not.
Updating the Instruments on Wutjavia is overdue. Allow me to show you new members of my musical tool box here, as I have added them to the Instruments page.
I have always wanted a Taylor Guitar! I’ve played them several times at music stores and have a couple family members who own them. I have played those as well. I love the sound. They have great action, and are beautiful as well.
Unfortunately, my Gibson B-45 12-string no longer functions even close to performance level. At least 20 years ago the neck began to detach from the body. I had a luthier who was able to restore its function, but I could no longer keep it at the normal E tuning. I stepped it down to D, attempting to lengthen its usable life, but not a complete fix.
Late last year I became aware of Taylor running a year-end sale; buy a qualifying guitar and get a choice from another list for up to 70% off list price. I’d had my eye on a 12-string for months, having played it at a guitar store in Minnesota. This might be the time to jump in. I selected Model 352ce to replace the Gibson.
Taylor 352ce 12-String – Double Stitch
For the “sale” guitar, I selected a Taylor GS Mini-e Koa, sight and sound unseen or heard. What a pleasant surprise! Its beautiful Koa wood body only enhances the overall quality and sound of this smaller-body instrument. With the included custom gig bag, it travels easily in the back seat or cargo area of my vehicle and produces bright, yet deep sound. It is versatile enough that I can play any song, either native to six or twelve strings.
GS Mini-e Koa – Stitch
I picked up these two beauties in early January of this year. Having not seen nor heard either guitar prior to purchase, I can say that I am thrilled with their workmanship, sound, look, feel, and playability.
Playing at Galilean in June confirmed my concern with my Alvarez Yairi. You can read about it, and how I selected it, on the Instruments page of this site. I love this guitar and have created and played numerous songs with it since purchasing it in 1997. Wow! That’s 26 years ago. Recently, though, it has been misbehaving. Adjusting the neck/action, and keeping it in tune – especially during performances – has become a frustrating distraction.
Consequently, I made a trip to a guitar store that I knew had several Taylor guitars of varying price levels, in stock. A funny side story developed as I began trying to test some of the options. Most of the Taylor guitars were on locked wall brackets. The salesperson was only allowed to unlock one at a time, making it difficult to compare sound and action between models. I finally complained and ended up being assisted by the store manager who had the authority to unlock multiple guitars for me to test.
I spent between two and three hours playing the same songs on various models, winnowing the field, eventually down to two models with one being significantly more expensive. Ultimately, there was no doubt that the Taylor 724ce LTD, priced literally thousands of dollars less than the competition, exhibited higher sound quality and playability. It produced sound similar to that of my Yairi, an important consideration when trying to marry its sound with my playing style. Not to mention the beauty of its solid Walnut body! The store manager was in total agreement, saying that the sound from each string rang true and clear.
Taylor 724ce LTD – Anchor
Meet my Taylor Guitars, Stitch, Double-Stitch, and Anchor (stitch).
My Taylor Stitches
There is yet another addition to my toolbox, a Breedlove Pursuit Concert CE NY. Purchased prior to Anchor, I was looking for an option specifically to address my finger-picked songs. I hoped to gain a different sound for softer songs, while providing increased playability with a wider neck and more flexible, nylon strings. This is a Classical style guitar that I use to develop sound and practice with less left-hand stress. I have not used it in performance, but I don’t rule out that option. I also anticipate new music emanating from its use.
So here they are; my updated musical toolbox contents. Those who have heard them played have commented on my sound, a sound that I greatly attribute to the tools I use to create it. I am composing, practicing, and playing with a renewed zeal. And I look forward to performing, with eyes on various venues in 2024.
New Tools!
Thanks for allowing me to introduce you to the new members of my musical family.
It takes so many forms, and affects so many aspects of learning to live with major loss.
Written in the journal I keep by my living room recliner on September 29th, the statement continues to resonate as the days have passed since then. The journal itself is a gift from my son and is from his trip to Machu Picchu. It is a wonderfully hand-made leather book of empty white pages bound by a leather tie, that I, being left-handed, turn upside down to write on the pages from right to left. I’ve been adding entries periodically since last October.
At times I’ve thought that being in this house exacerbates the ongoing reminders of Pam missing out on our retirement years, of the emptiness I feel as the months go by without her, of the forfeiture of my hopes and dreams of our future together – of my future alone. I constantly change things around, rearrange the bedroom furniture, new linen and quilt, some of the wall hangings. I have changed the towels, mats, and shower curtain more than once in the last year, trying to change what was ours into what is now only mine. But I still get into an empty bed and wake up in the same. Getting into the shower, grab bars still in place, reminds me of Pam’s last year when she needed help with her intimate needs. The grab bars remain as an admission that I, too, am aging and admit the potential need for assistance, another reminder of having to make do on my own.
But it’s not the house, now my home. Reminders are everywhere. Go to a restaurant, a park, visit a friend, go bowling – which we enjoyed so much together. As I found out many years ago during my rebellious time as a youth, being happy, being “good” or “bad”, loving and hating , etc. are not dependent on location or one’s lot in life. Extricating myself from everything I know and have in life does not eliminate what is going on inside my head and heart.
Nearly seventeen months after Pam’s passing, I continue to live hour by hour, day by day. Some are better than others. And though I have few elated moments, I can still slip into despair that I cannot live up to what I think is worthy of Pam’s love and faith in me.
As she and I discussed, and I have mentioned before, I knew, and it has come to pass, that I am not the same person without her, not as “good” as I felt when bolstered by her love and presence in my life. Just this week my sister reminded me that Pam knew me, knew my weaknesses, knew my strengths, and loved me for who I am. Those things she saw in me are still part of me.
I believe this is why I am able to continue to get into an empty bed and wake up in the same. It is why I continue to reshape my surroundings to reflect who I am without her, still not understanding who that is. Yes. Grief is my relentless companion. But Pam’s love, the love and support of my family and friends, and my own will to live keep grief from having complete dominion over me.
On a lighter tack, as part of my process of carving out a new life without Pam, I recently attended a 55+ luncheon at the rec center. I’m pretty sure that at age 69, I was the youngest attendee. Lunch was catered and, I still can hardly believe it, I played Bingo after lunch and even won a round!
Two positive outcomes emerged as a result of my attending. A nice man named Frank took the initiative to sit with me during the luncheon. He recognized that I was new and graciously helped me feel less alone. He is twice widowed! Frank invited me to join a seniors bowling league, either bowling for at team, or as a sub. Three weeks ago I did just that, substituted for someone who could not bowl for their team. I bowled poorly, but I have always enjoyed bowling, and the challenge of being better at it than I am. I’ve now been there three weeks in a row and am known as a “regular” substitute available to anyone who cannot attend. My bowling has improved significantly since the first week and I look forward to subbing again next week. I’m getting familiar with some of the people there, have heard a few stories about their losses, and I am becoming familiar to them.
But this positive aspect of my new life is still tainted by my relentless companion. Pam and I used to enjoy bowling together with family and as members of church leagues. She was quite the bowler with the straightest delivery I have ever seen. Starting down the middle and barely wavering by a board! It is hard to avoid the guilt of enjoying bowling without her. An example of how life is changed and grief lingers.
In addition to my new social interactions, I received an email, through this web site address, wutjavia@gmail.com, from the 55+ luncheon coordinator, the only person attending who was clearly younger than I! I had given her my Wutjavia card after the event. It turns out that Bingo is not the only weekly luncheon entertainment. Guest speakers are invited to present, I suppose, just about anything, to the luncheon audience. She perused this site, read about my Glacier travels, and has asked me to present a travel log of my choosing to the group, inclusive of narrative and pictures. And though it won’t be delivered until sometime early next year, I enthusiastically agreed to do it.
One of the blessings of being with Pam was our mutual respect for the things we loved as individuals. She had her stamping and greeting cards. They were amazing outpourings of her love of people and of life. She attended conferences with her stamping friends, conducted online research, bought incredible tools, paper, and stencils, and created phenomenal works of art that she gave freely to others to honor special occasions, or just “thinking about you.” Sometimes she even asked for my advice on a design, or to hold paper or ribbon while she attached them to a card.
I had my travels (and my music), mostly to mountainous regions, camping and backpacking. With camera attached at the ready, I hoped to capture, as much as a picture can, amazing landscapes, vistas, and animals experienced along the way. And though she hated me being gone, and in potential danger, Pam encouraged me and supported me each year as I planned, either on my own or with my son, then departed on another adventure. She used to make “car treat” bags with anything from Pez candy to mini tissue packs, games and booklets. Anything she thought we might enjoy and laugh at as we drove many hours to our mountain destinations.
Now, though I am constantly reminded of what I have lost, I also remember what I/we had and can at least get a glimpse of a life that continues to evolve, with grief as my relentless companion.
The heat has broken. It finally feels like autumn, though still no rain here. It’s been two weeks since returning from Atlanta. Home alone reality is setting in. Pam passed away nearly sixteen months ago. Apparently, life goes on.
If there is a new normal, hopefully this isn’t it. To do lists have many checked boxes. Though there is more to be done before winter sets in. Daily routines are established, varying slightly from week to week for appointments and brief getaways. But the familiarity and comfort of established norms do not stave off the sadness and ache of missing Pam, nor the sorrow of her missing out on life. In some way, it seems the intensity has grown.
So much has been written describing grief, many pictures and animations. One such depiction arrived this week in a text message.
What to make of this? Where’s the fit? If the graphic is accurate, the message true, then some point along a continuum should be recognizable. But not. Life apparently goes on, but has yet to grow big enough to assuage the pain of loss. Conversely, if grief diminishes over time, apparently life must go on a long time before it begins to smother the grief. Either way, it’s a struggle to relate.
Sometimes anger wells up amidst the sadness and sorrow. How could she be taken away?! Were we not all the better for her presence in this life? Yes, we were! Yes, we are!
On the Other Hand
Better memories of Pam are emerging as time passes. Earlier pictures are reminders of happier times. Every one depicting the beautiful person she was, a beacon of kindness and compassion. One should hope to be such a person. Though she was so loving, and so loved, she was so much better than she ever thought she was. That, too, is part of her beauty.
So all is not just gloom and doom. Life cannot be all bad (though the news sources seem to differ) when such amazing people sojourn among us. We just have to recognize their positive contributions to our lives; enjoy their nature. Live to honor their lives. Live in hope that the circle will somehow, some day, grow to comfort us, to buffer us from the pain and sorrow of our grief.
Further Reflection
All of the above was written earlier in the week. Consideration was given to tossing it all out as being too depressing. But no. It stands as is. But said again, all is not just gloom and doom! Much enjoyment comes from the home we shared, now home alone. Much joy is felt when talking to and being with family and friends. Neighbors are friendly and encouraging. Autumn is a beautiful time of year in Iowa. And though it foreshadows winter, it also holds its own beauty for us to enjoy.
Now. Here’s the test. Can you figure out the missing word in this week’s post? You may post a comment in response. Or, if you would like to submit your guess privately, send a message at wutjavia@gmail.com.
Have a great week!!! Here’s hoping for happier topics as life go on.
From my reading, it appears that the differences between a caregiver and a caretaker are subtle. Two significant differences are that a caretaker’s charge might be an animal or a building rather than a person, and that the caretaker expects to be compensated for their efforts.
Both caregivers and caretakers aid people needing assistance with daily tasks, from doing laundry and preparing meals, to personal hygiene and grooming needs. But the caregiver is typically more emotionally invested, expecting no reward, than the caretaker who’s primary motivation is their own need, i.e. monetary compensation. This is not to say that caretakers are not caring or empathetic, nor emotionally attached to their charges. Nor is it true that caregivers are never compensated. Thus continue the subtle differences between the two. In fact, the two terms are often used interchangeably.
Distinguishing between the two became a topic of conversation for my sister and me during my recent visit to Atlanta. She IS my Mother’s caregiver, having taken her into her home over four years ago. My sister needed a medical procedure that required a recuperation period in which she could not lift or twist her upper body. And though her husband often assists with daily responsibilities, and our sister provides weekly respite relief, they also work and are unable to be “on call” for daily tasks.
And so I offered to help out. Shortly after my arrival, I began relearning the routine implemented to provide for my Mother’s needs. I would execute it while my sister and her husband were away. So when the day arrived I got up early to ensure that breakfast was on the table just so, and I was ready to help with her inhaler.
As the day progressed, I realized I had transitioned seamlessly and nearly effortlessly back into the caregiver role I learned while caring for my late wife, Pam. Seamless because I only realized it later in the day. Nearly effortless in that Mom’s needs are different than Pam’s, and my sister’s home is laid out differently and the kitchen configured differently than my home. Otherwise, my demeanor, and the methods I employed to care for my Mother, came back naturally.
Reflecting, later, on this transformation, I made two observations. First, I learned valuable skills while caring for Pam that I could use to assist others as a part-time caregiver/caretaker if I so choose. Second, I have neither the desire nor will to be a full-time caregiver again.
As I revisit the caregiver role, and observe and talk with my sister, I am reminded of the emotional and physical toll being a 24/7 caregiver takes. One truly has to put another’s needs about one’s own, even potentially at physical and emotional detriment.
My sister’s procedure was successful and without incident. I continue to assist with Mom’s care, and also with helping my sister do those tasks she should not be performing while recuperating.
I am thankful that my sister’s procedure went well. I am thankful to have the opportunity to step in when her physical need could not be delayed – could not be ranked below Mom’s care. I am thankful for the knowledge, wisdom, and compassion I learned while caring for Pam, though I wish it had not been necessary! But I also realize that if someone close to me has need, I could and would transition back into a caregiver role with little or no hesitation.
Much as I want to share my experiences on other subjects, like Windmill Choreography, I cannot escape my feelings of emptiness and loss. Today they spilled out in some poetic form. I’ll work on travels and windmills, family and friends, beauty in life (and death), and other such things. But today I woke to a description of my current reality. And thus I share.
She Won't Be Back AgainFrom dreamless sleep I waken
But the nightmare continues
She won't be back again
The sun is shining
The breeze is blowing
But the nightmare continues
She won't be back again
I see her in her children
Grandchildren carry on
And the nightmare continues
She won't be back again
Talking to an empty room
The pain of her absence lingers
And the nightmare continues
She won't be back again
Looking at pictures of her
She smiling back at me
But the nightmare continues
She won't be back again
Laying down to slumber
Dim the lights, mute the sound
Dreamless sleep a solace
In the morning the nightmare resumes
She will never be back again
I continue to cry. So many reminders do me in. The world continues to turn. Its inhabitants go on with their lives. So many seemingly impactful events unfold every day. I am aware of them but they seem less important than my grieving. And though I still wear the grease-paint, “I hurt all the time deep inside.”
Next week I’ll have another opportunity to be more cheerful in my musings. One can hope! Until then, know that I continue to ride the wakeful waves of dreams and nightmares. I hope for good dreams and wakeful states for all of you this week and beyond.
