Tag: Family

Gains and Losses

Two Steps Forward

Yeah, I guess this is life! Recently made notes to myself reveal a general improvement in my psychological wellbeing. Such gains are tempered by yet another loss, though only a partial one.

I began to notice subtle changes as I prepared for and experienced transitioning Mom to memory care. I realized early this week that I had been gone every weekend, and over half of the weeks, from Thanksgiving with family in Ankeny, through last weekend with family in MN. I found myself feeling comfortable at home just before the travels began.

Last weekend I was visiting daughters and families in Minnesota. This has been an emotionally challenging trip since Pam’s passing. They are all great and I love them and seeing them in their homes, living their lives. Anticipating this weekend I realized that I wasn’t stressed over possible challenging emotions. Rather, I was just looking forward to being with them. Major – positive – change!

I had lunch with (fellow subscriber) Linda on my way to MN. Linda and I share very similar caregiver experiences (Dave passed 18 months before Pam). And though we continue to compare “notes” about our experiences, we spent at least as much time just talking about family and travels. In other words, we were focused on living our lives now rather than revisiting the past.

I am aware that I am feeling less guilty for feeling good. For the longest time feeling good ultimately led to another round of sadness/depression. How could I betray Pam by not being miserable?! But I actually feel happy at times. I am beginning to enjoy my life as a retiree. It feels good to feel alive again – to trust myself again.

None of these feelings are betrayals. I think of Pam constantly. Everything I do and see reminds me of her. I miss her intensely and tell her so. When I see a reminder, especially of who she was and how she lived life, I tell her that I love her. Though thinking and saying this is probably about me and not her, It is the truth non-the-less. This is what she wanted for me.

One Step Back

On the other hand, leaving Atlanta I knew that I wouldn’t be able to talk with Mom on a regular basis (we chose not to give her a phone, at least for now). I realized this week the sense of loss, in some ways similar to my feelings of losing Pam.

Anticipating such an emotional event does not lessen the impact when it comes to pass. Just like with Pam, I could hardly let my emotions interfere with what I had to do, as a caregiver for Pam, and as a businessman for moving our Mother. The aftermath still includes some management, but there is much more time to feel. Now these new feelings of loss are mixed with those I already had.

Some of my gains are now back in the shadows. I can see them, yet they are clouded by renewed sadness. I know good feelings will return, but I struggle to grab onto them again.

Another cloud looms on the horizon. I’ve seen this cloud before when it was clear that Pam would not survive her disease for long. Mother will be 99 years old in just over a week. She has moderate dementia, but still realizes that there is not much left to live for. She also has stamina! The end will ultimately come. Probably sooner than later.

As I navigate gains and losses, I am sure there will be plenty of both to come for the rest of my life. This is something important that I have learned. Every one is a new chapter that I am ready and willing to live. I still want to – live!

Last week was the 17-month anniversary of Pam’s passing. It was the Tuesday after returning from Atlanta. I was still catching up on – well – everything from the trip. It wasn’t until this past weekend that I realized that the day went by without my acknowledging it. It was the first time. Next month will be a more significant milestone. Will I remember? Probably. Then, on to two years, and beyond. A step at a time.

Words – Impacting Our Lives

If you did not read last week’s post, Dream Within a Dream, I recommend that you do so before continuing here.

Family gatherings such as weddings, funerals, and reunions, evoke normal emotions of joy, sadness/loss, and “Wow! I haven’t seen her/him forever. My how they’ve changed.” Often, however, they bring deep-seated, maybe suppressed, feelings to the surface. Sometimes they erupt with power and major fallout. Sometimes they rise to the surface and are shared as either fond memories, or with trepidation.

Coming together as a sibling team to transition our Mother to memory care was such an occasion. All preparations culminated in a smooth transfer, even some elation, as we sat around the house reviewing what transpired, and discussing our myriad of emotions.

Over sixty years ago our father died at the age of 37. My eldest sister was 13, followed by another, age nine. I was seven, and my little sister was four. Our young lives were in complete disarray, to say the least. So many confusing events and emotions that children should not have to face, but often do.

It was a few days after Mom’s transfer that our emotional history surfaced when our “little” sister relayed her long-held traumatic experience. “After daddy died we were given a contest on who could be the most help to Mom. At 4 I could not begin to compete… I’ve never felt I could do enough or be enough help.“

My eldest sister responded, “ Interesting about contest-you have probably been trying to catch up your whole life!!!!” And my other sister, “I remember the competition. I cleaned out my drawers over and over again. Maybe that’s why I don’t do it anymore.” The youngest, “I remember you vacuuming.”

My contribution; “And I am still convinced that Mom telling me I had to be the man of the family instilled in me a perfection complex and that I could never do enough or get it right.” My younger sister’s response, “Yes and this role you have now fits right into that. And I didn’t want the role because at some level I felt I couldn’t do it.“

My uncle (my Father’s brother) told me years later that he always felt guilty for telling me that “God needed your daddy more that we do“, thinking that it caused some of my adolescent and young adult challenges. I totally let him off the hook when I told him it was what Mom had said that left the lasting impression.

Though my eldest sister did not relay any deep-held reactionary words, knowing her and with a few faint memories, I am sure that she, being several years older than the rest of us, naturally took on the role of surrogate mother, trying to help our overwhelmed, grieving Mother. Mom had been a stay-at-home mother and was thrust into the role of family provider. Thankfully, her friends came to her aid with a job and other assistance. But my sister was often the oldest person at home. I can also attest that she later raised two amazing daughters of her own. Along with her natural bent, she clearly learned much from her early, traumatic experience.

Yet more impactful words:

Eldest sister – “And Daddy telling J to take care of M!!!“
Middle sister – “Those were his final words to me.“
I chimed in – “And Mom’s first words to me.”
Middle – ” I was thinking that Keith!“
Eldest – “Pretty heavy trips to lay on children!“

Though much of this history was known to us, the vivid memories, complete with mental pictures/video of the events, have rarely been shared all at once and together. This single horrific event was amplified and indelibly printed on our brains – with lifelong impact – by our elder family’s words.

As I look back on my family relationships and rearing my children, I know I have my own gaffs to come to terms with. I’m sure we all do. By this time in our lives, I assume that my sisters and I hold no grudges against those adults in our lives as they were doing the best they could. Imperfectly, as we all are.

But it’s something to consider. Are there unresolved consequences of our words and actions on our parents, siblings, spouses, children? On my part, I hope those I have impacted understand that I never set out to hurt anyone. There are few people who do.

And now I’m off to visit many of those people to celebrate the holidays. For me it is really about celebrating our relationships with each other. I am thankful for each and every one. And I hope that for those whose relationships I may have broken, I might still make amends.

May your holiday season be merry and bright. And may those who love you, and those you love, express impactful words of love and, if necessary, understanding and forgiveness!

Dream Within a Dream

Today is Friday the 8th of December. By the time this post is published, I will be on my way back home from Atlanta. I wish I could say that the last eleven days were a rollercoaster of events and emotions, but the reality is that it’s been intense the entire trip.

My Hotel California (it’s her ringtone on my phone) sister arrived the same Tuesday as I, but a while later in the evening. We are here to support my We are Family (yes, her ringtone) sister and her husband Yoav, and my younger sister who lives in Atlanta (To My Little Sister – not a ringtone, but an unrecorded song I wrote for her), and each other through the final stages and aftermath of moving our Mother to memory care. That event took place last Friday, the 1st.

My sisters and I round out our Mother’s biological children. Mom has been staying with, and been primarily cared for by Jan and her husband Yoav for the past four and a half years with Darla’s valuable help.

Continued preparations masked the emotional stress associated with a life altering event such as this. And though we were able to discuss some of that emotion, we could not let it interfere with the task at hand.

Emotional stress can manifest in many different physical and behavioral ways. From cramps and rashes to a spectrum of silence to complete outpouring of thoughts and feelings. The five of us, first with Mom present, then with her absence, manifested several symptoms of both types.

But our time together was just that – together. We have been sharing a common, deeply personal yet communal experience of grief, loss, empathy, fear, and hope. We knew it individually and recognized it in each other.

My sisters and I took walks together, and individually, as we worked through our thoughts and feelings. On one walk I saw an eagle soaring high above, yet nearby. I texted my sisters who came out to see. I don’t attribute any higher power significance to seeing the graceful, flying creature, but experiencing it together was a treat.

As I knew it would, preparing for this transition over the past few months has pushed the loss of Pam back toward the surface of my conscious and subconscious mind. I could feel it lingering and swelling just below the surface. Of course it did. Not as a cataclysmic volcanic eruption; more like a fissure opened with thick hot lava oozing and moving along the surface of my psyche. I was able to express my feelings to this private support group of family. It helped to stem the flow.

Today I woke with vivid awareness of two dreams that actually were a dream within a dream. I was at home in the kitchen looking through the pass-through to the living room where Pam was sitting in her chair. It was a comfortable, normal scene with pleasant conversation. I watched her get up slowly (not normal) and realized, within the dream, that I was hallucinating and that Pam wasn’t really there. As she walked slowly toward the hallway and began to fade, I cried out that I knew it was a hallucination but I didn’t want it to end. Please!!!

I woke to find myself in a strange location, in some kind of garage with screened in, open, door. There were several other people there that I think I recognized, but can’t identify. Sitting next to two of these vaguely familiar co-occupants, I tried to relay my dream, only to have them tell me to get professional help. And so I tried to explain, even argued, that such manifestations of emotional stress are normal with loss and grief, but they couldn’t understand.

Commotion outside. An eagle pounced on a squirrel atop a power pole just down the street. Screeching. Flailing. The squirrel fell, with the eagle in pursuit. But missing that opportunity, it swooped toward a small dog outside a house across the street. Grabbed it. But it, too, got away.

I woke as the eagle was flying low, chasing the dog, who was chasing the squirrel! Now, awake for real, and as you can now see, I was able to recount in my mind exactly what had happened. This, too, was a manifestation of my emotional stress. Played out in a dream within a dream.

Epilogue

We continue to navigate our new logistical and emotional terrain since last Friday. Cheryl went home yesterday to California, and, as I said, I will be traveling as this post is published. Jan, Darla, and Yoav are left to take care of Mom’s daily needs, though in different roles, and they will have different experiences than before. From my perspective it has not been a rollercoaster. Rather an intensely emotional experience that we are all thankful to have shared together.

Life is But A Dream? Or are we dreaming within dreams? Too deep for me to contemplate now.

Caregiver vs. Caretaker

(Not to be confused with undertaker.)

From my reading, it appears that the differences between a caregiver and a caretaker are subtle. Two significant differences are that a caretaker’s charge might be an animal or a building rather than a person, and that the caretaker expects to be compensated for their efforts.

Both caregivers and caretakers aid people needing assistance with daily tasks, from doing laundry and preparing meals, to personal hygiene and grooming needs. But the caregiver is typically more emotionally invested, expecting no reward, than the caretaker who’s primary motivation is their own need, i.e. monetary compensation. This is not to say that caretakers are not caring or empathetic, nor emotionally attached to their charges. Nor is it true that caregivers are never compensated. Thus continue the subtle differences between the two. In fact, the two terms are often used interchangeably.

Distinguishing between the two became a topic of conversation for my sister and me during my recent visit to Atlanta. She IS my Mother’s caregiver, having taken her into her home over four years ago. My sister needed a medical procedure that required a recuperation period in which she could not lift or twist her upper body. And though her husband often assists with daily responsibilities, and our sister provides weekly respite relief, they also work and are unable to be “on call” for daily tasks.

And so I offered to help out. Shortly after my arrival, I began relearning the routine implemented to provide for my Mother’s needs. I would execute it while my sister and her husband were away. So when the day arrived I got up early to ensure that breakfast was on the table just so, and I was ready to help with her inhaler.

As the day progressed, I realized I had transitioned seamlessly and nearly effortlessly back into the caregiver role I learned while caring for my late wife, Pam. Seamless because I only realized it later in the day. Nearly effortless in that Mom’s needs are different than Pam’s, and my sister’s home is laid out differently and the kitchen configured differently than my home. Otherwise, my demeanor, and the methods I employed to care for my Mother, came back naturally.

Reflecting, later, on this transformation, I made two observations. First, I learned valuable skills while caring for Pam that I could use to assist others as a part-time caregiver/caretaker if I so choose. Second, I have neither the desire nor will to be a full-time caregiver again.

As I revisit the caregiver role, and observe and talk with my sister, I am reminded of the emotional and physical toll being a 24/7 caregiver takes. One truly has to put another’s needs about one’s own, even potentially at physical and emotional detriment.

My sister’s procedure was successful and without incident. I continue to assist with Mom’s care, and also with helping my sister do those tasks she should not be performing while recuperating.

I am thankful that my sister’s procedure went well. I am thankful to have the opportunity to step in when her physical need could not be delayed – could not be ranked below Mom’s care. I am thankful for the knowledge, wisdom, and compassion I learned while caring for Pam, though I wish it had not been necessary! But I also realize that if someone close to me has need, I could and would transition back into a caregiver role with little or no hesitation.