Category: Life with Pam

On the Other Side

I began this blog in March of 2020 just as COVID was beginning to really grip the world. I was concurrently in the early stages of providing extended care for my wife suffering from Parkinson’s Disease with Dementia – or Lewy Bodies Disease depending on who’s doing the diagnosing. At first posting was sporadic but began to give me an outlet for expressing my hopes, fears, frustrations, love, and learning.

As time and disease progressed, my musings became more cathartic as I delved into music, travel, and continued challenge. When Pam died, I found myself more committed to consistent discourse on many subjects, but most importantly to me, about me working through my grieving process for a loss I couldn’t comprehend. You, my faithful readers, have supported me with your responses, your concern, your caring, and yes, love.

Therefore, I think it only fair and fitting for me to convey the excitement and wonder I am experiencing as I realize I have emerged on the other side. I’ve seen it approaching. I could sense the change in me. In my relationship with my Pam. With acceptance of things that, though I in no way wanted, could do nothing to change.

As it happened, it really began with the sudden decision two months ago that it was time to move closer to where my son and his family live. I realized that I no longer needed or wanted to be all the time reminded of my former life that was so viciously taken from me by a disease. My mate that I love taken away much too soon. Resolute, I began a new journey, still unfolding, that moved and accelerated at a pace I had no clue would catapult me to where I am now.

Since then, I quickly acquired an apartment, began moving “stuff”, and realized I could already live in it. Within a couple weeks I had abandoned my former house to begin a new chapter. I have not looked back. And though I so enjoyed that house, neighbors, and neighborhood, I am totally comfortable and excited in my new abode. Now I have sold “our” home. Soon to be forever in my past as I experience my present and my new future.

I have re-established, and in some cases begun new relationships with high school acquaintances from fifty years ago. I am realizing new opportunities to be a grandparent, a father to my son, and the possibility of new companionship and maybe even future love.

Those of you who know me know that I have lived with purpose over the last two plus years to work through my grief, to take care of my physical and mental health, with the goal of making to this new point of possibilities, new hopes for a happy future. I think I have made it!

Yet I recognize and realize that, as I venture into new and uncharted territory, times and places that extend beyond what had been, I will always love Pam. I will never forget her. I still think of her daily. And often I smile. I smile because I know that she knew that if she went first, I would get here and that she wanted this for me. I can reminisce about our good times without dwelling on the desperate last few years of challenge and sadness.

So I am sharing, and hoping to adequately convey, my feelings of excitement and thankfulness for all that has been and the prospect of things to come. My sincere hope has been that by sharing my experience I could be a guide, a comfort, a solace, to at least one other person who reads wutjavia. I can say confidently that I have made it. I am not so naive to think that there won’t be challenges, loss, and heartache in my future. But I have regained my strength and self confidence. I am ready to face what comes.

And it is amazing. And I just wanted you all to know. You have been instrumental in me mastering my struggles. I hope you sense and are edified by what I am writing today. I hope and yes, maybe even pray, that you can glean something from it. And… Thank you!

P.S. In the midst of my excitement and current euphoria, I just learned that my brother-in-law’s sister passed away last night after an extended illness. They have been geographically separated for many years but fortunately have had recent opportunity to be together. My sincere condolences go out to Eddie, his 100+ year old Mother, his younger sister, and extended family. My heart is sad in the knowledge of what they now have to experience (again) as they work through their grief journeys. Eddie, I wish you well!

Special Connection

Caregivers develop a special, deeper connection with those who are in their care. I have no empirical data to support this claim. Anecdotal stories do support it though. I have my personal experience, those of family members, and friends who have cared for and lost those close to them.

It is only logical to assume that caregivers who are not “related” to their charges develop special, deep connections with those they care for. Again, no empirical data, but I cannot imagine they don’t.

Pam and I had a special relationship from the git go. I am sure we were in love before we knew it. We lifted each other up, consoled each other, confided in each other, and counseled each other. I’ve realized more recently that she saw more good in me than I saw in myself. I know Pam struggled with her own positive identity. But I saw her true self as did she see mine.

Collaborating with my sister who has been the primary caregiver for our aging (99-1/2 years old) Mother brings to light changes in relationships with our loved ones. I with Pam, she with our Mother. As Jan confides in me, it is easy to empathize with the deeper emotional ties she has developed even as her caregiving role has changed. I hear it in her voice (our conversations are by the phone). The occasional catch in her voice. The tell-tale sign of tears welling in her eyes. Her concern for our Mother’s failing cognition and general health.

Jan’s experience has helped me understand my own special, deeper relationship with Pam as the insidious disease ravaged her both physically and mentally. I’m sure I’ve said before that I didn’t realize the depth of my love for Pam until we traveled that horrible path. But now I see that my love and care for Pam actually deepened even more with the experience.

It’s hard to explain because we were still so much in love after 20 plus years of marriage. But many things changed as she became more dependent on me for her everyday needs. She slowly lost the ability to convey those needs or communicate in complex ways. I know she hated the dependence, but was also thankful to have my help.

For my part, I had to listen closely, not due to volume, but to understand. I had to develop ways to provide both physical and emotional support that I never knew I could. And her condition was always changing, and thus my means and methods. I had no training.

Caregiving is a noble endeavor. One that I imagine is very fulfilling for those professionals who choose to train for and engage in it. Jan and I have witnessed how professional caregivers work with those to which they are assigned. Whether they are members of private, commercial organizations or of non-profits like Hospice. Of course, they are not all equally sensitive or compassionate. But for the most part, it is apparent that they, too, try to, and ultimately do develop special connections with those they care for.

As we age, our exposure to caregiving is thrust upon us almost by default. If not for an aging parent, then for a partner or other close relative. And there are those who must take on the role for their young spouse, partner, or worse yet, their children. In the midst of it, it’s hard to recognize the good and positive aspects of your care and commitment. Know, though, that regardless of the outcome, your efforts are not in vain. You become more sensitive, empathetic, compassionate, and wise. From then forward, you will find it easier to experience special, deeper connections with those you care for, and for other caregivers as well.

It’s Getting Real – Again

(Shout out to K & K who should recognize the title)

It’s Thursday as I’m writing this. I don’t think I’ll be back in here until next week. I’ll be traveling to Nebraska as this post is published. Meanwhile, my week has become increasingly more difficult as the anniversary of Pam’s death looms. I can feel it in my entire being. Low energy, mood swings, painful memories that sprout up again from their dormant past.

Early last Sunday, having woken up in the middle of the night as is typical, I realized that the hour was close to that of Pam’s passing. One week to go – two years ago. Vivid imagery, as a painful video, played in my mind. I broke into tears.

On the phone with my sister during the week, while we were discussing the ravages of Parkinson’s Disease (her husband had PD also), I walked into the living room and saw in my mind’s eye, family sitting around the room, picture albums and scrapbooks removed from storage totes, evoking painfully good memories for Pam’s siblings and offspring. Always at least one person in the next room with Pam, just being, or praying, recounting memories, or feeding her ice cubes and popsicles. Anything to try to ease her pain. The vigil.

Once again the reminders of Pam’s impactful presence in my life as I go about my daily activities, remembering what we did together or how Pam’s way of doing things has become mine. All the while visions of her, early in our time together, until the end, like a digital auto-biography of her and our life together playing on the screen of my mind as if imaged there.

After all this time I realize that the place I least want to be is the bedroom and find it the most difficult room to be in. I dislike going to bed, giving up the day. Another day without my Pamie. I sleep fine once I get there. The challenge is just getting there. Not only do I miss Pam’s companionship, it is also the place where she breathed her last. The place from which she was taken away, never to return. I cry as I write this!

Last week’s post was a testament to how far I have come in my grief journey, following through on my promise to Pam that I would be okay. But now is a time of intense reflection filled with sorrow and loss. My trip to “Pam’s” bridge on Sunday will be equally, if not more, intense. Yet I know I must go. I’ve known it since I poured her ashes into the stream running through the Bachman family farm.

I don’t plan to make it an annual ritual, but as with many expectations in life, things don’t go as planned. If so, Pam would still be with me/us and we would be enjoying our retirement years traveling, maybe even to the family farm, together. And we would go so many other marvelous places, enjoying them together. But that is not reality. This is.

New Normal

As the 2nd anniversary of Pam’s passing approaches, remembering and, in some cases, reliving what has transpired over the past five plus years, I recognize that I have, in deed, settled into a new normal. I realize that what goes on from day to day in my life centers around “normal” chores, tasks, challenges.

This does not change my love for Pam nor feeling of loss. It does not stop the memories and their associated feelings of love, pain, and anguish. They are now, however, intertwined with my “normal” life.

In these times, one is almost expected to question what “normal” is. In this context, normal is what most people live with and feel as part of their every day living. Normal includes a wide range of activities and feelings, thoughts and actions. People normally deal with aging and loss. We normally have health issues and interpersonal challenges. We laugh, we cry, we enjoy good times, and rue the bad. Feelings of doubt and craziness are part of being normal.

My aging aches and pains are normal for someone my age. My self-reflection and perception are normal. My feelings of love, gratitude, frustration, self-doubt, sadness, and loneliness – are normal.

It is normal to go to bed tired and often reflective of the day’s events, sometimes satisfied, sometimes with anxiety. It is normal to wake up pondering what will transpire, both planned and unplanned, psyching up for whatever the day might bring.

Feelings of happiness, sadness, frustration, contentment, and want are normal. Taking care of home, car, body, all normal. Sharing with friends and family, neighbors, and passers by are typical daily events.

And yet, for me, it’s still a “new normal.” Normal used to be experiencing all of the above with someone so close that you can know, without speaking, what the other is going through. Normal used to be buffered with the love and understanding of the one who loves you more than anyone, and with whom you love. Normal used to be softened by feelings of love and compassion for your partner, your soul mate, if you will.

Now, for me, normal is living alone, accepting this fact and being okay with it and myself – warts and all. Many daily tasks and experiences are the same as they used to be, in the “old normal”, but now I experience them alone. The old normal is captured in a poem our daughter framed for us for our wedding. It is attributed to Apache/Indian folklore, but is actually fake lore (fakelore).

Now you will feel no rain,
for each of you will be
shelter to the other

Now you will feel no cold,
for each of you will be
warmth to the other

Now there is no more loneliness

Now you are two persons,
but there is only
one life before you

Go now and enter into the days of your life together

from the 1947 novel Blood Brother by American author Elliot Arnold and popularized in the film adaptation, Broken Arrow, released in 1950

Poetic verse, prose, or lyrics describing what is MY new normal are still being written. After all, I am still grasping the scope of it. As the anniversary approaches, I suspect that I will contemplate its meaning with renewed intensity. For better or for worse, this, too, is part of my “new normal.”

Iatrophobia

Fear of Doctors

Originally, I planned to write about fear in general. But that subject seemed too broad. I may take it up in multiple posts at some later time.

Cigna Healthcare defines iatrophobia as “…people [who] have such an intense fear of doctors that they are said to have a phobia of doctors. The clinical word for this is, ‘iatrophobia.’” They further define symptoms as follows:

  • You cancel doctor appointments or keep rescheduling them to avoid dealing with the fear; you don’t even get the preventive care and important vaccinations you may need to help stay healthy.
  • Instead of seeing a doctor when you’re sick, you try and self-treat.
  • In advance of a doctor appointment, you are unable to concentrate on anything else, lose sleep, may not eat, or cry at the thought of the upcoming appointment.
  • Do you have a fear of dentists, hospitals, and even sickness or illnesses? Some or all of these other types of fears are commonly combined with a fear of doctors.
Cigna Healthcare

To be fair, Cigna also states from the outset that some level of stress leading up to any type of healthcare visit is normal. Based on the symptoms listed above, I cannot definitively say that I suffer from iatrophobia. However, based on my personal experiences in the past couple years, well, let’s just say, I suffer! I found it interesting that Cigna also suggests working with a therapist to help alleviate the symptoms. Okay. I know that therapists aren’t necessarily doctors. But seriously. When you have this phobia, don’t they count?! (sorry Cynthia 😉 )

About three years ago, I finally went to the dentist due to an ongoing toothache. I hadn’t been for a few years. COVID, and caregiving were great excuses to avoid the dreaded chair. Unfortunately, this pain would no longer wait. I had a cracked tooth, presumably from clenching my jaw as I sleep. I later got a mouth guard to assuage that issue.

So I went through the process of getting a root canal and crown. It was stressful. In addition to my personal angst, Pam’s cognition was deteriorating and, as a result, I had to take her with me, leave her in the waiting room (and give instructions to the front desk assistant) while I went under the drill. But we got through it without a mental breakdown (on my part).

Forward to after Pam’s passing

About this time last year, I had a similar problem on the other end of my lower jaw. A persistent toothache. I knew the symptoms and the process. Still a result of clinching my jaw. Schedule a visit to the dentist, go for a root canal, get the crown. I can handle this. Except this time I was told that there wasn’t enough bone left for a crown and I would have to have the tooth pulled.

Instant anxiety. Another loss trauma. I broke down crying while still in the chair! And, I had to schedule with another oral surgeon to get the procedure. Unfortunately, that meant I had plenty of time to “stew” over the appointment. Mind you, I was in a fragile emotional state, dealing with losing my Pam and trying to get my health and my life on a new trajectory.

I knew I was not in a good place when I went to the appointment that day. The first thing they do when you get in the chair is take your blood pressure. Mine was extremely high. They were almost afraid to do the procedure. Take it again, similar results. And again, just a bit better. I told them that I have the anxiety and elevated blood pressure every time I see a doctor and this is extra stressful. Procedure done. Take blood pressure again. Still very high. Now they were afraid to let me get up. But, having no other symptoms, they let me go.

Over the next few days I knew that my BP was still elevated. Still no symptoms besides a feeling of high anxiety. Got a monitor. Yep, still high. Ended up at the hospital. Everything normal except BP. Long story short, I’m on BP medicine now.

I’m not sure how much of this I have already written. But I came to the realization, somewhat recently, that I was living every day in fear of dying. I’ve been afraid, to an obsessive extent, that if I eat the wrong foods, don’t exercise enough, don’t sleep well, high BP, whatever, I was going to die. It is an irrational fear, due mostly, I think, to watching my Pam deteriorate and die in front of me. It is not abnormal in those who lose a close loved one.

Forward to current events

Well, backing up for a moment. Last year my right thumb began to lock up at the joints. Movement was painful and I lost range of motion and gripping capability to the point that I could hardly hold a guitar pick. Problematic! Over time it eased, and I was able to avoid seeing a doctor.

Last November, my left thumb locked up and it’s been a problem ever since. It has impeded my ability to play guitar to the point where I stopped for days at a time. I’ve tried to work it out on my own and discussed it with family and my chiropractor. She, along with a daughter who knows of such things, suggested that I look into physical therapy.

I have an upcoming performance, the first for a bunch of people I do not know, in a public setting. I’ve been working through the pain and impediment so I can practice in preparation. I finally made the move Wednesday when my chiropractor recommended a specific physical therapy company. I went directly there. They were great and, after a quick referral from my primary care, I had an appointment for Thursday. Now I have a therapy plan and high hopes for long term recovery from tendinitis. I also found out that, at least on my left side, it may be related to issues I’ve been having with my shoulder. So much for fear of doctors.

I’m not sure if I suffer from iatrophobia. I can relate to some of the symptoms. Maybe you have similar issues. Hopefully, with recent success, increased knowledge, and recognition of the normalcy of my experiences, I can better deal with health issues and abandon the fear of eminent death.

Monday I have a teeth cleaning and PT for my thumb. Wednesday, it’s an appointment for my hearing devices and PT. If getting out there and doing it help with overcoming a phobia, I must be on the right path. Hopefully also, with life in general. I guess the moral to the story is, if you have health issues, work with the professionals.

Birds

A pair of Cardinals has been nesting somewhere nearby for several years now. They mate for life. They warm my heart for several reasons. They are beautiful, regal birds. The male’s bright red color, complete with pointed tuft, exudes confidence and power. He is first to the cardinal feeder, approaching cautiously, peering out from one of the surrounding trees before swooping out to perch on the tray filled with Safflower. The Mrs., though less conspicuously brown with red highlights, matches her mate in majesty with the same tufted head and powerful profile.

When I wake early enough, I see them in the dawning light, half hiding as in shadow so as not to be seen and somehow in danger. Always cautious, the slightest movement, either from the outside, or if I am seen through my window, puts them to flight. They repeat the pattern at dusk. I find myself keeping open my blinds in hopes of catching a glimpse in the fading light after sunset. Sometimes, and it seems especially on these cold, snowy days, they come out during the day. Mr. Cardinal prefers the feeder, Mrs. Cardinal, the ground (or snow currently) where seeds have been kicked off the feeder ledge, mostly by the many messy sparrows that ‘grace’ our feeders every day – all day.

Mr. C. at Sunset

Pam’s Mother loved cardinals. Thus, do her children and grandchildren. One of them gave us a Metalbird tree ornament that now protrudes from the Birch tree outside my living room window near the feeders. Since her passing several years ago, the prevailing thought is that somehow the presence of a cardinal indicates her spirit visiting among us, usually at times of want or need. I don’t know about that, but they are no less a reminder of our loved ones (I now include Pam) whenever they appear. That is special!

Cardinals are by no means the only birds to visit the feeders my neighbor and I have hanging on shepherd’s hooks between our houses. Most numerous and pesky are the sparrows. I’ve counted upwards of forty fluttering balls of brown and white feverishly attacking every type of feeder and the spillage on the ground around them. They remind me of coots on a lake swimming along the shore in hoards, hoping for some tasty marine morsels. Or bluegill in a pond, lurking along the edges and milling just under the surface in the deeps, always hungry; ready to snatch the bait or tied flies I cast in hopes of bass or trout.

Fewer in number, and not quite as pesky, are the house finches. Their size and shape are similar to sparrows. But their colorings make me think that at some point there must have been some hanky panky between some cardinals and sparrows. I like them, though, I guess for their colorings as much as anything.

Chickadees are so much fun. They flit about like cardinals, always cautious, always aware. Often arriving in pairs, they first settle in the trees then dart over to the cardinal feeder, take one seed, then return to a branch, pecking at it between their toes to break the shell and enjoy the meat inside. Then off again to the feeder and back. But never returning to the same branch. Their lighthearted appearance lifts mine as I watch.

I also like the juncos. They are typically ground feeders that seem to be around more in the winter months. They are easy to spot against the snowy blanket and dine on the buffet created by sparrows spilling their fare from the feeders above.

Many years ago, in another town, outside another window, I had two woodpecker feeders among several others. I delighted in attracting several species from downy and hairy, to flickers and pileated. Once in a great while a true red-headed woodpecker would grace me with its presence. So far, since hanging the feeder here, my only patron has been the downy. But I keep hoping.

Just recently, a pair of blue jays found their way back to the area after a very long absence. Though they are bullies, they are beautiful so I like seeing them around.

There are many other birds I listen and look for when I am walking through the woods or along the waterways. Of course the eagles and hawks enthrall me still. But now the one I wish most to see is the Bluebird. They are somewhat rare around here, migrating from the south to breed. I’ve always enjoyed seeing their bright blue plumage. Now this species means so much more to me. The bluebird on my mantel reminds me also of the beauty of the person I once knew as my wife. This could be the makings of a song (or at least a poem). Oh, wait. It already is.

My Little Bluebird

Born of a Cardinal and a stone
She never wanted to be alone
Much too soon she flew away
The world will never be the same
She was my little Bluebird

    My little Bluebird You flew away
    Could you not stay for another day
    With broken wing and a heart of gold
    We never had the chance to grow old

A lovely bird kept my feet on the ground
Her arms around me, so comfortably bound
As one together, yet free to be
Our love of each other let us see
She was my little Bluebird

    My little Bluebird you flew away
    Could you not stay for another day
    With broken wing and a heart of gold
    We never had the chance to grow old

Now you live on in my heart and mind
A new life I now must find
Without you I feel so alone
But for you I will make it on my own
You are my little Bluebird

    My little Bluebird You flew away
    Could you not stay for another day
    With broken wing and a heart of gold
    We never had the chance to grow old

You gave my life meaning
Yet we didn’t understand
Why you were losing yours
Why am I keeping mine?
I go on for you my little Bluebird

    My little Bluebird You flew away
    Could you not stay for another day
    With broken wing and a heart of gold
    We never had the chance to grow old

(c)

Parkinson’s Revisited

Because it is important

As the second winter storm of the week makes seeing even across the street difficult, I am staying warm and dry in my Eastern Iowa home. I’ll deal with the snow tomorrow! Meanwhile, we are still getting mail and in it a couple days ago came another packet from Parkinson’s Foundation.

Along with the usual thank you messages for being a faithful contributor and requests for additional support, it included a simple cheat sheet called “10 Early Signs of Parkinson’s Disease.” I am including this list here even though it is clearly stated through the link.

  1. Tremor: Have you noticed a slight shaking or tremor in your finger, thumb, hand or chin? A tremor while at rest is a common sing of Parkinson’s disease.
  2. Small Handwriting: Has your handwriting gotten much smaller than it was in the past? A change in handwriting may be a sign of Parkinson’s called micrographia.
  3. Loss of Smell: If you seem to have more trouble smelling foods like bananas, dill pickles or licorice, you should consult your doctor.
  4. Trouble Sleeping: Do you thrash around in bed or act out dreams when you are deeply asleep? Sudden movements during sleep may be a sign of Parkinson’s disease.
  5. Trouble Moving or Walking: Do you feel stiff in your body, arms or legs? Have others noticed that your arms don’t swing when you walk? If your feet seem “stuck to the floor,” you should ask your doctor about Parkinson’s.
  6. Constipation: If your diet contains enough fiber and water and you are still constipated, it can be a sign of Parkinson’s disease.
  7. Soft or Low Voice: Have other people told you your voice is very soft or that you sound hoarse? If there has been a change in your voice, you should talk to your doctor about whether it could be Parkinson’s.
  8. Masked Face: Have you been told that you have a serious, depressed or mad look on your face, even when you are not in a bad mood? If so, you should bring this up with your doctor.
  9. Dizziness or Fainting: Feeling dizzy or fainting can be linked to Parkinson’s.
  10. Stooping or Hunching Over: If you notice that your seem to be leaning or slouching when you stand, it can be a sign of Parkinson’s disease.

Some of these signs are typical as we get older. I am nearly seventy years old and could point to one or two from time to time. But several, especially in combination, are clearly worth discussing with you doctor.

Last year researchers found a biomarker, a protein named alpha synuclein as part of the The Parkinson’s Progression Markers Initiative (PPMI). The University of Rochester published an article called What You Need to Know about the New Parkinson’s Biomarker that does a good job of explaining the publication of the findings in The Lancet.

The importance of this discovery is that of early detection. It does not pinpoint a genetic root and therefore doesn’t point directly to a cure. But treating PD, even before symptoms manifest, is a step in the right direction.

Personally, I am interested in Parkinson’s Disease Dementia (PDD) and Lewy Bodies Disease, for one of these is surely responsible for Pam’s decline and demise. And all of these diseases, along with Alzheimer’s, relate to alpha synuclein protein.

So, what’s my point?

Besides simple education, I have two goals in revisiting the subject of PD, PDD, LBD, and AD. The first is to impress upon you who might acknowledge the symptoms to get help early. And though there is no cure, the hope is for better quality of life for as long as possible. If you have a family history of any of these diseases, check into testing for the biomarker. It can lead to earlier treatment and, again, better quality of life.

Secondly, there are several opportunities for helping in researching a cure for these diseases. Of course you can donate. Money always helps. The Michael J. Fox Foundation for Parkinson’s Research, the Parkinson’s Foundation, and The Alzheimer’s Association are all dedicated to curing the group of diseases associated with dementia.

There are also opportunities, such as the The Parkinson’s Progression Markers Initiative (PPMI), for contributing your personal information – and more – even if you don’t have or have a history of PD et.al. Take a look.

Pam and I knew so little about Parkinson’s-related diseases when we finally went to see a neurologist. The tremor in her right hand was the first physical sign. But looking back, we, her family, recognize that she was suffering from cognitive decline well before the tremor. Though recognizing the signs earlier may not have changed the trajectory or outcome of the disease, we may have been able to increase Pam’s (and therefore my) quality of life longer. Maybe Pam could have had a chance to enjoy some of her retirement – and we would have been able to enjoy her a little bit longer. So, if you notice any of the above changes, or have doubts about what you are experiencing, please don’t wait for someone you love to tell you there’s something wrong. Take care of yourself and therefore, the ones you love.

Stay warm and dry for the rest of the winter. Stay safe. Stay healthy.

No Travel Plans – I Am Home!

Every week I hope to conjure up some new, interesting topic to write about. Something other than exposing my life and psyche for all the world to see. Once in a while I am successful. The task, however, is made more difficult by shying away from politics and religion. Maybe some day. Meanwhile, I continue to share my inner thoughts and feelings in hopes that the reading is worthwhile and maybe will touch someone in a positive, healing way.

For the first time since Pam’s passing nearly 20 months ago, I have no travel plans. No holidays, no projects out of town, no weekend visits. I have no planned trips to Atlanta (yet), or vacations to plan for. Nor do I have any camping or backpacking trips planned. Though I think about that often. I did, however, book my first gig for February. But it’s here, within a mile from home.

I am home. I sit in my easy chair and look around while I’m on the phone or reading. I’ve been in the music studio a few times since the year began. I view the other end of the large family room to see another sitting area along with my rowing machine. And while I am rowing, I see my studio (funny how that works 😉 )

My home is transformed. Much of the furniture is the same. Some a bit rearranged. Many pictures and mementos on the walls and shelves are as they have been for years. Some have been replaced with ones I found in storage.

I have many reminders of my amazing Pam1. Her Bluebird on the mantel. Pictures of us from our early years together. Always we are close together, always smiling – for real! Sometimes I still buy daisies and alstroemeria, placed in an Isabel Bloom vase on the dining room table. Based in the Quad Cities, their decorative concrete sculptures were integral with Pam’s growing up there. I have many figurines depicting angels, animals, and various holiday representations. I enjoy seeing them around the house. Happy reminders of Pam’s happy things.

As I look, I see that home is now mine. Though I sleep in the same bed, I am beneath different covers. Different towels, mats, and curtains adorn my ensuite. Dishes, tools, and gadgets are organized for my sole use in the kitchen. And from my chair I scan the living and dining rooms to find that they now reflect me, rather than “we”.

Now when I look I have memories. Not forgetting all we had together, nor how we lost it. But not so much constantly reliving the painful times. Beginning to reflectively smile at the good times. I am becoming comfortable at home.

  1. As I navigate through my new life, I am constantly aware – possibly more now than before – of what an amazing human being Pam was. Of course, no one is perfect. But seemingly, her entire being was of love and giving. Always seeing good in people, with the possible exception of herself. Kind. Gentle. Humble. Caring. Loving. Devoted. Sweet. Naive? I am humbled by having been loved by this wonderful woman and by my fortune in knowing her and loving her so intensely. It is truly better to have loved…!

Lost And Found In The Music

Happy holidays to you all! And an honest hope for a happy, healthy, and peaceful 2024!

I woke up Christmas morning with the realization that I had, in deed, been anxious about the coming holiday. I thought I was done with this level of anxiety subsequent to my recent travels and family events. Not so. I didn’t understand why my blood pressure was still higher than normal nor why I found it difficult to sit still during the day or go to sleep at night.

Sure. I know the tendencies of those who grieve to be affected by holidays and anniversaries. I’ve lived it. But I thought I was really doing better. Didn’t I just write about it? So what gives!?

Doesn’t matter. It is so. I cried. No, I wailed. Over and over as the morning passed and the rain (not snow) continued to fall, and the wind continued to blow.

The well-wishes started to light up my phone. “Thinking of you.” “Merry Christmas, Keith.” “Hope your day goes well.” All nice, warm sentiments that I appreciated very much. Knowing that family and friends understood my sorrow forced smiles in the midst of sadness.

By late morning, though, not knowing what to do or how to create a happier day, I found that I wanted to play music. I’ve been practicing with my Alvarez Yairi recently, so I unsheathed it from its case, tuned it, and began to play. First were songs for and about Pam. After all, it is she who I honor on Christmas more that any deity. For she loved the celebration of the holidays so.

So I played. And I played some more. I was lost in my music. Not necessarily playing well. I hadn’t been practicing much lately. It didn’t matter. I was in touch with the sound and the origins of the lyrics that meant so much to me, and that I did write them. I played for an hour. And then another. Taking breaks to rest my hands and voice, wetting my whistle, eating snacks.

From my travels: Lolo Pass, I Look Away, Parkersburg.
Family; loves and losses: When Comes the Time, Rae J, Tell Elizabeth I Love Her, Sarah’s Song.
And, of course, my Pamie Sue: She Sleeps, The Song I Never Wrote For You, Our Lives In Love, Anything To Please.
And many, many more. Covers of Cat Stevens, The Moody Blues, Simon and Garfunkel.

On I played throughout the day. It felt good. I felt better. And I remembered the commitment I made to Pam, shortly after her death, to pursue the music. To follow through with the dream. To give to others that which I have to give. Not amazing, artistic greeting cards as was Pam’s gift, but my music, both old and new. To share myself and those in my life with anyone who will listen and relate, or just enjoy the sound.

The more I played, the more I realized that I am fulfilling that dream. Music is the one constant, the one calming, honest, and true gift that I have to hold onto as I learn to live on my own, without my Pam. And it is due to her that I have been free to write and play for the past almost 30 years. She has been my muse, my inspiration, my collaborator, and my fan.

Now I prepare for the next chapter in what has become the life of a singer songwriter – my life. I have been looking forward to it for a very long time. I have thirteen new, unrecorded, original songs and 6-8 covers that I hope to record over the next few months. Hopefully, I’ll be done by Spring, ready to “hit the road” armed with hours of live music to share. And there are several completed songs that I have yet to practice, to prepare them for performance and recording. Several additional in-progress songs also await in the fringes of my repertoire. I hope I get to them all.

Finding my voice in my music brings me joy and satisfaction. I celebrate my life with Pam, and without her. Being lost in the music is a good thing. I find solace and comfort, able to forget the anxiety of loss during the holidays, and of the challenges that lie ahead. At least for a while, while I play.

Maybe you, too, may find some comfort or consolation. Lost and found in the music.

Still it is difficult to grasp that she is gone.

Gains and Losses

Two Steps Forward

Yeah, I guess this is life! Recently made notes to myself reveal a general improvement in my psychological wellbeing. Such gains are tempered by yet another loss, though only a partial one.

I began to notice subtle changes as I prepared for and experienced transitioning Mom to memory care. I realized early this week that I had been gone every weekend, and over half of the weeks, from Thanksgiving with family in Ankeny, through last weekend with family in MN. I found myself feeling comfortable at home just before the travels began.

Last weekend I was visiting daughters and families in Minnesota. This has been an emotionally challenging trip since Pam’s passing. They are all great and I love them and seeing them in their homes, living their lives. Anticipating this weekend I realized that I wasn’t stressed over possible challenging emotions. Rather, I was just looking forward to being with them. Major – positive – change!

I had lunch with (fellow subscriber) Linda on my way to MN. Linda and I share very similar caregiver experiences (Dave passed 18 months before Pam). And though we continue to compare “notes” about our experiences, we spent at least as much time just talking about family and travels. In other words, we were focused on living our lives now rather than revisiting the past.

I am aware that I am feeling less guilty for feeling good. For the longest time feeling good ultimately led to another round of sadness/depression. How could I betray Pam by not being miserable?! But I actually feel happy at times. I am beginning to enjoy my life as a retiree. It feels good to feel alive again – to trust myself again.

None of these feelings are betrayals. I think of Pam constantly. Everything I do and see reminds me of her. I miss her intensely and tell her so. When I see a reminder, especially of who she was and how she lived life, I tell her that I love her. Though thinking and saying this is probably about me and not her, It is the truth non-the-less. This is what she wanted for me.

One Step Back

On the other hand, leaving Atlanta I knew that I wouldn’t be able to talk with Mom on a regular basis (we chose not to give her a phone, at least for now). I realized this week the sense of loss, in some ways similar to my feelings of losing Pam.

Anticipating such an emotional event does not lessen the impact when it comes to pass. Just like with Pam, I could hardly let my emotions interfere with what I had to do, as a caregiver for Pam, and as a businessman for moving our Mother. The aftermath still includes some management, but there is much more time to feel. Now these new feelings of loss are mixed with those I already had.

Some of my gains are now back in the shadows. I can see them, yet they are clouded by renewed sadness. I know good feelings will return, but I struggle to grab onto them again.

Another cloud looms on the horizon. I’ve seen this cloud before when it was clear that Pam would not survive her disease for long. Mother will be 99 years old in just over a week. She has moderate dementia, but still realizes that there is not much left to live for. She also has stamina! The end will ultimately come. Probably sooner than later.

As I navigate gains and losses, I am sure there will be plenty of both to come for the rest of my life. This is something important that I have learned. Every one is a new chapter that I am ready and willing to live. I still want to – live!

Last week was the 17-month anniversary of Pam’s passing. It was the Tuesday after returning from Atlanta. I was still catching up on – well – everything from the trip. It wasn’t until this past weekend that I realized that the day went by without my acknowledging it. It was the first time. Next month will be a more significant milestone. Will I remember? Probably. Then, on to two years, and beyond. A step at a time.