Hi all. It’s 11 a.m. this Saturday morning and I am still processing this week’s performances and want to wait on the report. Please stay tuned for next week’s post. No need to “Read More.” It isn’t there.
Category: Impacting my Life
PPA:
It’s a TLI
PA: It’s also a TLI, or a TLA
I used to do this in the classroom. There were so many abbreviations. In my jargon, a TLA is a three-letter acronym – and also a two-letter acronym. But I know that actually, PPA is not a three-letter acronym. It’s a three-letter initialism.
a word (such as NATO, radar, or laser) formed from the initial letter or letters of each of the successive parts or major parts of a compound term
Merriam Webster Dictionary
an abbreviation formed from initial letters
Merriam Webster Dictionary
“Okay”, you might say, “Wut’s this all really about?” Well, I thought I might be coining a new acronym/initialism, but once again, Google search saved me from embarrassment.
PPA is an initialism for Pre-Performance Anxiety. According to WebMD, pre-performance anxiety is stress and anxiety about performing in front of people and causes performance anxiety. PA can be considered either an initialism or an acronym since its letters also form a colloquialism for father. Performance Anxiety is also known as stage fright.
Now do you see where I’m headed with this? I now have two performances scheduled for next week. On Thursday I will participate in an open mic at Sidekick Coffee & Books in Iowa City. I recently added this venue after previously committing to the 55+ Connections Lunch at the North Liberty Recreation Center.
I’ve known about the 55+ gig for some time and have been practicing a set of songs that I hope will engage and somehow positively affect the lives of those who attend. Now that the time is near at hand, I find myself second guessing. Are my music and lyrics really “good” enough for public consumption? Is my presentation polished enough to expose myself to scrutiny? Will my aging, stiff fingers work!!!? On the up side, I do think I’ll remember the words.
I am not self-absorbed enough to think I am the only person who experiences performance anxiety (stage fright). I immediately think of my 13-year-old granddaughter who landed a major part in a community theater musical that opens next Friday, the same day as my 55+ performance. Break a leg, E! And there are others in my immediate sphere who have upcoming meetings and interviews who may deal with similar anxieties.
I found an interesting article, Get excited: reappraising pre-performance anxiety as excitement, on the National Library of Medicine website. Just reading the abstract helped me reframe my perspective:
Abstract
Individuals often feel anxious in anticipation of tasks such as speaking in public or meeting with a boss. I find that an overwhelming majority of people believe trying to calm down is the best way to cope with pre-performance anxiety. However, across several studies involving karaoke singing, public speaking, and math performance, I investigate an alternative strategy: reappraising anxiety as excitement. Compared with those who attempt to calm down, individuals who reappraise their anxious arousal as excitement feel more excited and perform better. Individuals can reappraise anxiety as excitement using minimal strategies such as self-talk (e.g., saying “I am excited” out loud) or simple messages (e.g., “get excited”), which lead them to feel more excited, adopt an opportunity mind-set (as opposed to a threat mind-set), and improve their subsequent performance. These findings suggest the importance of arousal congruency during the emotional reappraisal process.
Alison Wood Brooks
PsycINFO Database Record (c) 2014 APA, all rights reserved
Next week will be a culmination of an extensive period of hoping, dreaming, and preparing that began even before my retirement and Pam’s illness and death. I’ve conveyed many times my desire to “take it on the road” with Pam during our retirement years, using venues as a tour guide for going places and seeing things together. Something we so enjoyed together.
These two gigs also mark the beginning of a new phase of reaching for the dream. Though I have performed at very limited open mic sessions and in front of a friendly audience of family and friends at a church, these are the first true public appearances in front of people whom I don’t know. No one will have heard the songs. No one will know what to expect. At the 55+, I’m not even sure they know that the program is a musician. They only know that there is a program every last Friday of the month.
Success will look like people not walking out during the first song or shortly thereafter. It will look like people looking at me, perhaps nodding with some sort of mutual understanding. Maybe even clapping? Success will catapult me forward in my journey, give me confidence to book other performances, find other ways to get my music out there. Obviously, failure will look and feel quite different.
Therein lies the fear with pre-performance anticipation. I am excited that I have followed through with the commitment to pursue my music. I believe that I have a message of humanness, one that not everyone is willing to share. It happens to be through music. I am fearful that my musical message will not be received, even though those who have listened have encouraged me.
Performance anxiety, stage fright, is another matter. My mouth gets dry, my heart rate goes up (even more than when I just play the songs), and I have trouble staying focused. My eyes and ears seem to work overtime to ferret out any peculiar distracting input, of which there are ample, when one is on stage. Practice, even trying to imagine myself at the venue, helps. Just thinking about looking out over the audience during practice is enough to distract me. Thus, the more I do it, the better I will be able to focus – I hope.
Again, none of this is unique to me. I am sure that many of you can relate at some level. And again, I am just egocentric enough to think it’s worth writing about. That you might enjoy the reading, and maybe get something worthwhile out of it.
By this time next week, all of the anticipation, anxiety, excitement, and of course, the performances will be over. I will have an emotional let down, as I always do. I will review and evaluate the outcome. Then I will pick myself up and figure out the next plan. Yet I have made a greater commitment – to Pam:
I will go on. I will be okay.
Privilege
a right or immunity granted as a peculiar benefit, advantage, or favor : PREROGATIVE
especially : such a right or immunity attached specifically to a position or an office
Merriam Webster Dictionary
As I ponder Webster’s definition of privilege, I’m not sure if it is an accurate reflection of my topic. But I think my discourse does reflect common understanding of the word.
He walked into the dentist's office asking for help with a tooth that, by the way he talked, was clearly causing him discomfort. He explained that he had been to another office that he previously patronized where he was told that they would have to begin a new, complete work-up. Apparently, it had been a while. "Can you help me?", he asked. "I just want help with this tooth right now. I don't want to start with a whole mouth evaluation." Assured now that this office would not deny him or make him jump through hoops to get immediate relief, he began looking for his dental insurance card to assist with the sign-in process. As he fumbled through a stack of cards in his wallet, he began to explain. "I know it's here somewhere. No, that's for my health insurance. Oh, that one's expired. I know it's here somewhere. "I'm glad to have insurance", he continued as he fumbled. "The place I work has been laying off. It sounds like more layoffs are coming. Oh, that looks like it. No, that's for prescriptions." His frayed baseball cap, faded plaid jacket covering a just as faded hoody, well-worn jeans, and scuffed up work boots betrayed his economic status. It certainly was not one of privilege. While still looking, the assistant was checking the schedule. "I can get you in at 12:30 and it might be a bit sooner. "I don't think I can do that. I have to go to the unemployment office and then get groceries for my mother." "How about two o'clock? Or two thirty?" "Well, I'm not sure... Let's just make it for the 12:00. I can just go to the unemployment tomorrow and get the groceries after the appointment. Oh, there it is! I really need to clean out this wallet."
Sitting in the lobby, waiting for the hygienist to call my name for scheduled teeth cleaning, I was aware of the different world this man lived in. I have lived a life of privilege.
Oh, I’ve had my difficult times, economically as well as physically and emotionally. Everyone does. This man, at least from my snap judgmental viewpoint, is living harder times than I.
My father died while I was young. My mother, with four young mouths to feed, had to find a job. She did. But she and my father were really just trying to get ahead in life before he died. Now it was a much larger challenge. I knew times were rough, but didn’t really understand.
But I was young and unaware of how anything in the world works. I was unfazed by economic struggles, even when mom married again. A man in between jobs. That didn’t last too long and as I grew into my tweens and teens, our household was one of upward economic and social mobility. I have benefited from that economic stability throughout my life other than a self-imposed poverty period in my early 20’s.
My father’s death and that poverty did manage to instill in me some empathy for others who are less fortunate. But I did attend an almost all white high school in the suburbs and wasn’t exposed to many alternative cultures until going to college.
So what is this really about? It’s about trekking through my life with some empathy, and a lot of guilt. I am guilty of not being empathetic enough. I am guilty of not doing more to help others in need. I am guilty of judging them by their apparent economic status rather than by their character. I think, because I have been privileged. Although I know such judgements go both ways.
I am thankful for my parents’ hard work to keep me fed and clothed; to provide me with more than my needs, to give me at least some of what I wanted. I am thankful that, at many tipping points in my life, my parents and family have supported me and, possibly most importantly, have provided safe haven when my world was anything but safe. So many around the world don’t have the luxury.
This post is a reminder to all of us that we (you and I) have lived some level of privilege in our lives. Though we might be on varying levels of the economic spectrum, most likely if you are reading this, you are not on the lower end. I dare say that most of you can relate to my empathy, my thankfulness, and my guilt.
Times being what they are, it is difficult to determine how to help. We are deluged with requests for donations in written, online, and multi-media forms. Who can we trust? You already know of some of my choices that include the Arbor Day Foundation, Parkinson’s Foundation, EWALU, Habitat for Humanity, and our local community pantry. Organizations I know first hand, or have researched and trust.
But assuaging guilt goes beyond giving of my fixed income resources. It must include a change in perspective, a change in judgement. I have been working on this for decades now and still have work to do. It must be a conscious effort to recognize biases and prejudices. Then, act in opposition to those preconceived notions. And that I try to do.
Regardless of my ramblings, it is a privilege to be able to share my personal struggles with you. I do hope that the sharing adds value to your lives. You may empathize, you may think I’m out to lunch. But I hope I make you think. That, too, is my privilege.
Iatrophobia
Fear of Doctors
Originally, I planned to write about fear in general. But that subject seemed too broad. I may take it up in multiple posts at some later time.
Cigna Healthcare defines iatrophobia as “…people [who] have such an intense fear of doctors that they are said to have a phobia of doctors. The clinical word for this is, ‘iatrophobia.’” They further define symptoms as follows:
Cigna Healthcare
- You cancel doctor appointments or keep rescheduling them to avoid dealing with the fear; you don’t even get the preventive care and important vaccinations you may need to help stay healthy.
- Instead of seeing a doctor when you’re sick, you try and self-treat.
- In advance of a doctor appointment, you are unable to concentrate on anything else, lose sleep, may not eat, or cry at the thought of the upcoming appointment.
- Do you have a fear of dentists, hospitals, and even sickness or illnesses? Some or all of these other types of fears are commonly combined with a fear of doctors.
To be fair, Cigna also states from the outset that some level of stress leading up to any type of healthcare visit is normal. Based on the symptoms listed above, I cannot definitively say that I suffer from iatrophobia. However, based on my personal experiences in the past couple years, well, let’s just say, I suffer! I found it interesting that Cigna also suggests working with a therapist to help alleviate the symptoms. Okay. I know that therapists aren’t necessarily doctors. But seriously. When you have this phobia, don’t they count?! (sorry Cynthia 😉 )
About three years ago, I finally went to the dentist due to an ongoing toothache. I hadn’t been for a few years. COVID, and caregiving were great excuses to avoid the dreaded chair. Unfortunately, this pain would no longer wait. I had a cracked tooth, presumably from clenching my jaw as I sleep. I later got a mouth guard to assuage that issue.
So I went through the process of getting a root canal and crown. It was stressful. In addition to my personal angst, Pam’s cognition was deteriorating and, as a result, I had to take her with me, leave her in the waiting room (and give instructions to the front desk assistant) while I went under the drill. But we got through it without a mental breakdown (on my part).
Forward to after Pam’s passing
About this time last year, I had a similar problem on the other end of my lower jaw. A persistent toothache. I knew the symptoms and the process. Still a result of clinching my jaw. Schedule a visit to the dentist, go for a root canal, get the crown. I can handle this. Except this time I was told that there wasn’t enough bone left for a crown and I would have to have the tooth pulled.
Instant anxiety. Another loss trauma. I broke down crying while still in the chair! And, I had to schedule with another oral surgeon to get the procedure. Unfortunately, that meant I had plenty of time to “stew” over the appointment. Mind you, I was in a fragile emotional state, dealing with losing my Pam and trying to get my health and my life on a new trajectory.
I knew I was not in a good place when I went to the appointment that day. The first thing they do when you get in the chair is take your blood pressure. Mine was extremely high. They were almost afraid to do the procedure. Take it again, similar results. And again, just a bit better. I told them that I have the anxiety and elevated blood pressure every time I see a doctor and this is extra stressful. Procedure done. Take blood pressure again. Still very high. Now they were afraid to let me get up. But, having no other symptoms, they let me go.
Over the next few days I knew that my BP was still elevated. Still no symptoms besides a feeling of high anxiety. Got a monitor. Yep, still high. Ended up at the hospital. Everything normal except BP. Long story short, I’m on BP medicine now.
I’m not sure how much of this I have already written. But I came to the realization, somewhat recently, that I was living every day in fear of dying. I’ve been afraid, to an obsessive extent, that if I eat the wrong foods, don’t exercise enough, don’t sleep well, high BP, whatever, I was going to die. It is an irrational fear, due mostly, I think, to watching my Pam deteriorate and die in front of me. It is not abnormal in those who lose a close loved one.
Forward to current events
Well, backing up for a moment. Last year my right thumb began to lock up at the joints. Movement was painful and I lost range of motion and gripping capability to the point that I could hardly hold a guitar pick. Problematic! Over time it eased, and I was able to avoid seeing a doctor.
Last November, my left thumb locked up and it’s been a problem ever since. It has impeded my ability to play guitar to the point where I stopped for days at a time. I’ve tried to work it out on my own and discussed it with family and my chiropractor. She, along with a daughter who knows of such things, suggested that I look into physical therapy.
I have an upcoming performance, the first for a bunch of people I do not know, in a public setting. I’ve been working through the pain and impediment so I can practice in preparation. I finally made the move Wednesday when my chiropractor recommended a specific physical therapy company. I went directly there. They were great and, after a quick referral from my primary care, I had an appointment for Thursday. Now I have a therapy plan and high hopes for long term recovery from tendinitis. I also found out that, at least on my left side, it may be related to issues I’ve been having with my shoulder. So much for fear of doctors.
I’m not sure if I suffer from iatrophobia. I can relate to some of the symptoms. Maybe you have similar issues. Hopefully, with recent success, increased knowledge, and recognition of the normalcy of my experiences, I can better deal with health issues and abandon the fear of eminent death.
Monday I have a teeth cleaning and PT for my thumb. Wednesday, it’s an appointment for my hearing devices and PT. If getting out there and doing it help with overcoming a phobia, I must be on the right path. Hopefully also, with life in general. I guess the moral to the story is, if you have health issues, work with the professionals.
Wandering Writings
More On Birds
Whoosh! I connected the sound.
Though all of my menagerie of feathered friends take to flight at the slightest movement or sound (except maybe the robins), departing sparrows are most noticeable simply due to their numbers. I had not recognized until this week that they make a collective sound as they depart from the bushes and ground just outside my living room window. I suppose my hearing devices pick up the whoosh better than with just my unaided hearing, but I was taken aback when I realized the soft sound was associated with their flight. Now I notice it all the time. Fun!
Goldfinches
American Goldfinches are hereby added to the menagerie. They are less noticeable in the winter when the males lose their golden color and thus blend in with the sparrows and other finches. But I was able to recognize them in the birch tree, feeding on its seed pods as they dangle, totally exposed, from the leafless branches.
Goldfinches are a treat, both visually and acoustically. Our neighborhood includes many echinacea plantings that produce a thistle-like seed pod at the center of their flowers – a favorite of the goldfinch. Goldfinches stay here the year round and I do enjoy their songs. You can listen by clicking the link above.
More On Bluebirds
One more note regarding bluebirds. Last week’s post instilled in me a desire to set My Little Bluebird to music. I listened to their songs on the link included previously and am attempting to emulate and include them, currently with chord progressions that I hope to put with the words. I’m thinking it’s going to take some massaging of the verse to make it work, but I look forward to creating something new and meaningful.
Ecclesiastes 1:9
What has been is what will be,
Book of Ecclesiastes, New Revised Standard Version
and what has been done is what will be done;
there is nothing new under the sun.
I think of this verse often as I ponder what to write to you about each week. I am self-aware enough to realize that my musings are simply different ways of expressing the same thoughts and feelings, observations and sensations, that humans, and maybe other animals and plants, have experienced since time began. I am self-centered and bold enough to express them anyway!
The wisdom in this verse also applies, and I think of this often also, to what’s going on in the world around us. I remember, many years ago (like back in the ’60s and ’70s) trying to impress upon my dad the tenuous times we were in. He would always respond that all which I mentioned, wars, floods, earthquakes, climate change, etc. have been with mankind since the beginning. It does not portend the end of the world.
Fifty plus years later, I think I understand and accept that he was right. Unfortunately, just because it’s nothing new, nor does our current global “situation” necessarily mean the end of mankind, nor that it has all happened before and the deeds being done repeat previous mistakes, make it easier to accept and deal with individually or collectively. When will we ever learn?! (scroll down to listen)
January Thaw
After one of the harshest beginnings to a new year, with record-breaking snow totals, January appears to be going out like a lamb here in eastern Iowa. I listened to the snowmelt dripping from the downspout each time I woke last night. I’m sure I’ll hear it again tonight as there is still plenty of snow on the roof and temperatures are predicted to remain above freezing. Additionally, we have a 100% chance of rain later today and into the night (Thursday). Rain! In January!
Add to that the dense fog that lingers all day as the humidity level stays nearly equal to the ambient temperature, a result of the melting snow. Sure beats sub-zero cold! Hopefully, February will take the hint and keep up the “nice” weather.
Still, cabin fever is setting in. But with daytime temperatures in the 30’s and maybe even 40’s next week, I am braving the weather for some outside walks. The brisk air is refreshing and still preferable to inside exercise.
The combination of cabin fever and temperate weather give me incentive to plan for travels again. Thus, I have a plan for the time around the second anniversary of Pam’s passing. Another trip to “her” bridge. Last year’s adventure was just that. You may recall I had to abandon my camping trip due to severe weather. This year, no camping. Rather I plan to visit other places along the way that I have wanted to return to.
Another trip south to visit my family, especially my Mother, around Atlanta is also in the works. Hopefully, this will become another adventure including new destinations along the way. I am also planning a special trip to celebrate a milestone birthday somewhere I can camp and hike. I’m looking into going east instead of west. No decisions yet.
January thaws are nothing new either. I am, however, happy to be looking forward to spring and summer. Happy to think of successfully making it through a second winter alone. Barring any unforeseen calamities, it appears that I will. And this winter will have been a much better one than its predecessor.
May the rest of your winter be healthy and hopeful.
Birds
A pair of Cardinals has been nesting somewhere nearby for several years now. They mate for life. They warm my heart for several reasons. They are beautiful, regal birds. The male’s bright red color, complete with pointed tuft, exudes confidence and power. He is first to the cardinal feeder, approaching cautiously, peering out from one of the surrounding trees before swooping out to perch on the tray filled with Safflower. The Mrs., though less conspicuously brown with red highlights, matches her mate in majesty with the same tufted head and powerful profile.
When I wake early enough, I see them in the dawning light, half hiding as in shadow so as not to be seen and somehow in danger. Always cautious, the slightest movement, either from the outside, or if I am seen through my window, puts them to flight. They repeat the pattern at dusk. I find myself keeping open my blinds in hopes of catching a glimpse in the fading light after sunset. Sometimes, and it seems especially on these cold, snowy days, they come out during the day. Mr. Cardinal prefers the feeder, Mrs. Cardinal, the ground (or snow currently) where seeds have been kicked off the feeder ledge, mostly by the many messy sparrows that ‘grace’ our feeders every day – all day.
Pam’s Mother loved cardinals. Thus, do her children and grandchildren. One of them gave us a Metalbird tree ornament that now protrudes from the Birch tree outside my living room window near the feeders. Since her passing several years ago, the prevailing thought is that somehow the presence of a cardinal indicates her spirit visiting among us, usually at times of want or need. I don’t know about that, but they are no less a reminder of our loved ones (I now include Pam) whenever they appear. That is special!
Cardinals are by no means the only birds to visit the feeders my neighbor and I have hanging on shepherd’s hooks between our houses. Most numerous and pesky are the sparrows. I’ve counted upwards of forty fluttering balls of brown and white feverishly attacking every type of feeder and the spillage on the ground around them. They remind me of coots on a lake swimming along the shore in hoards, hoping for some tasty marine morsels. Or bluegill in a pond, lurking along the edges and milling just under the surface in the deeps, always hungry; ready to snatch the bait or tied flies I cast in hopes of bass or trout.
Fewer in number, and not quite as pesky, are the house finches. Their size and shape are similar to sparrows. But their colorings make me think that at some point there must have been some hanky panky between some cardinals and sparrows. I like them, though, I guess for their colorings as much as anything.
Chickadees are so much fun. They flit about like cardinals, always cautious, always aware. Often arriving in pairs, they first settle in the trees then dart over to the cardinal feeder, take one seed, then return to a branch, pecking at it between their toes to break the shell and enjoy the meat inside. Then off again to the feeder and back. But never returning to the same branch. Their lighthearted appearance lifts mine as I watch.
I also like the juncos. They are typically ground feeders that seem to be around more in the winter months. They are easy to spot against the snowy blanket and dine on the buffet created by sparrows spilling their fare from the feeders above.
Many years ago, in another town, outside another window, I had two woodpecker feeders among several others. I delighted in attracting several species from downy and hairy, to flickers and pileated. Once in a great while a true red-headed woodpecker would grace me with its presence. So far, since hanging the feeder here, my only patron has been the downy. But I keep hoping.
Just recently, a pair of blue jays found their way back to the area after a very long absence. Though they are bullies, they are beautiful so I like seeing them around.
There are many other birds I listen and look for when I am walking through the woods or along the waterways. Of course the eagles and hawks enthrall me still. But now the one I wish most to see is the Bluebird. They are somewhat rare around here, migrating from the south to breed. I’ve always enjoyed seeing their bright blue plumage. Now this species means so much more to me. The bluebird on my mantel reminds me also of the beauty of the person I once knew as my wife. This could be the makings of a song (or at least a poem). Oh, wait. It already is.
My Little Bluebird
Born of a Cardinal and a stone
She never wanted to be alone
Much too soon she flew away
The world will never be the same
She was my little Bluebird
My little Bluebird You flew away
Could you not stay for another day
With broken wing and a heart of gold
We never had the chance to grow old
A lovely bird kept my feet on the ground
Her arms around me, so comfortably bound
As one together, yet free to be
Our love of each other let us see
She was my little Bluebird
My little Bluebird you flew away
Could you not stay for another day
With broken wing and a heart of gold
We never had the chance to grow old
Now you live on in my heart and mind
A new life I now must find
Without you I feel so alone
But for you I will make it on my own
You are my little Bluebird
My little Bluebird You flew away
Could you not stay for another day
With broken wing and a heart of gold
We never had the chance to grow old
You gave my life meaning
Yet we didn’t understand
Why you were losing yours
Why am I keeping mine?
I go on for you my little Bluebird
My little Bluebird You flew away
Could you not stay for another day
With broken wing and a heart of gold
We never had the chance to grow old
(c)
Parkinson’s Revisited
Because it is important
As the second winter storm of the week makes seeing even across the street difficult, I am staying warm and dry in my Eastern Iowa home. I’ll deal with the snow tomorrow! Meanwhile, we are still getting mail and in it a couple days ago came another packet from Parkinson’s Foundation.
Along with the usual thank you messages for being a faithful contributor and requests for additional support, it included a simple cheat sheet called “10 Early Signs of Parkinson’s Disease.” I am including this list here even though it is clearly stated through the link.
- Tremor: Have you noticed a slight shaking or tremor in your finger, thumb, hand or chin? A tremor while at rest is a common sing of Parkinson’s disease.
- Small Handwriting: Has your handwriting gotten much smaller than it was in the past? A change in handwriting may be a sign of Parkinson’s called micrographia.
- Loss of Smell: If you seem to have more trouble smelling foods like bananas, dill pickles or licorice, you should consult your doctor.
- Trouble Sleeping: Do you thrash around in bed or act out dreams when you are deeply asleep? Sudden movements during sleep may be a sign of Parkinson’s disease.
- Trouble Moving or Walking: Do you feel stiff in your body, arms or legs? Have others noticed that your arms don’t swing when you walk? If your feet seem “stuck to the floor,” you should ask your doctor about Parkinson’s.
- Constipation: If your diet contains enough fiber and water and you are still constipated, it can be a sign of Parkinson’s disease.
- Soft or Low Voice: Have other people told you your voice is very soft or that you sound hoarse? If there has been a change in your voice, you should talk to your doctor about whether it could be Parkinson’s.
- Masked Face: Have you been told that you have a serious, depressed or mad look on your face, even when you are not in a bad mood? If so, you should bring this up with your doctor.
- Dizziness or Fainting: Feeling dizzy or fainting can be linked to Parkinson’s.
- Stooping or Hunching Over: If you notice that your seem to be leaning or slouching when you stand, it can be a sign of Parkinson’s disease.
Some of these signs are typical as we get older. I am nearly seventy years old and could point to one or two from time to time. But several, especially in combination, are clearly worth discussing with you doctor.
Last year researchers found a biomarker, a protein named alpha synuclein as part of the The Parkinson’s Progression Markers Initiative (PPMI). The University of Rochester published an article called What You Need to Know about the New Parkinson’s Biomarker that does a good job of explaining the publication of the findings in The Lancet.
The importance of this discovery is that of early detection. It does not pinpoint a genetic root and therefore doesn’t point directly to a cure. But treating PD, even before symptoms manifest, is a step in the right direction.
Personally, I am interested in Parkinson’s Disease Dementia (PDD) and Lewy Bodies Disease, for one of these is surely responsible for Pam’s decline and demise. And all of these diseases, along with Alzheimer’s, relate to alpha synuclein protein.
So, what’s my point?
Besides simple education, I have two goals in revisiting the subject of PD, PDD, LBD, and AD. The first is to impress upon you who might acknowledge the symptoms to get help early. And though there is no cure, the hope is for better quality of life for as long as possible. If you have a family history of any of these diseases, check into testing for the biomarker. It can lead to earlier treatment and, again, better quality of life.
Secondly, there are several opportunities for helping in researching a cure for these diseases. Of course you can donate. Money always helps. The Michael J. Fox Foundation for Parkinson’s Research, the Parkinson’s Foundation, and The Alzheimer’s Association are all dedicated to curing the group of diseases associated with dementia.
There are also opportunities, such as the The Parkinson’s Progression Markers Initiative (PPMI), for contributing your personal information – and more – even if you don’t have or have a history of PD et.al. Take a look.
Pam and I knew so little about Parkinson’s-related diseases when we finally went to see a neurologist. The tremor in her right hand was the first physical sign. But looking back, we, her family, recognize that she was suffering from cognitive decline well before the tremor. Though recognizing the signs earlier may not have changed the trajectory or outcome of the disease, we may have been able to increase Pam’s (and therefore my) quality of life longer. Maybe Pam could have had a chance to enjoy some of her retirement – and we would have been able to enjoy her a little bit longer. So, if you notice any of the above changes, or have doubts about what you are experiencing, please don’t wait for someone you love to tell you there’s something wrong. Take care of yourself and therefore, the ones you love.
Stay warm and dry for the rest of the winter. Stay safe. Stay healthy.
No Travel Plans – I Am Home!
Every week I hope to conjure up some new, interesting topic to write about. Something other than exposing my life and psyche for all the world to see. Once in a while I am successful. The task, however, is made more difficult by shying away from politics and religion. Maybe some day. Meanwhile, I continue to share my inner thoughts and feelings in hopes that the reading is worthwhile and maybe will touch someone in a positive, healing way.
For the first time since Pam’s passing nearly 20 months ago, I have no travel plans. No holidays, no projects out of town, no weekend visits. I have no planned trips to Atlanta (yet), or vacations to plan for. Nor do I have any camping or backpacking trips planned. Though I think about that often. I did, however, book my first gig for February. But it’s here, within a mile from home.
I am home. I sit in my easy chair and look around while I’m on the phone or reading. I’ve been in the music studio a few times since the year began. I view the other end of the large family room to see another sitting area along with my rowing machine. And while I am rowing, I see my studio (funny how that works 😉 )
My home is transformed. Much of the furniture is the same. Some a bit rearranged. Many pictures and mementos on the walls and shelves are as they have been for years. Some have been replaced with ones I found in storage.
I have many reminders of my amazing Pam1. Her Bluebird on the mantel. Pictures of us from our early years together. Always we are close together, always smiling – for real! Sometimes I still buy daisies and alstroemeria, placed in an Isabel Bloom vase on the dining room table. Based in the Quad Cities, their decorative concrete sculptures were integral with Pam’s growing up there. I have many figurines depicting angels, animals, and various holiday representations. I enjoy seeing them around the house. Happy reminders of Pam’s happy things.
As I look, I see that home is now mine. Though I sleep in the same bed, I am beneath different covers. Different towels, mats, and curtains adorn my ensuite. Dishes, tools, and gadgets are organized for my sole use in the kitchen. And from my chair I scan the living and dining rooms to find that they now reflect me, rather than “we”.
Now when I look I have memories. Not forgetting all we had together, nor how we lost it. But not so much constantly reliving the painful times. Beginning to reflectively smile at the good times. I am becoming comfortable at home.
- As I navigate through my new life, I am constantly aware – possibly more now than before – of what an amazing human being Pam was. Of course, no one is perfect. But seemingly, her entire being was of love and giving. Always seeing good in people, with the possible exception of herself. Kind. Gentle. Humble. Caring. Loving. Devoted. Sweet. Naive? I am humbled by having been loved by this wonderful woman and by my fortune in knowing her and loving her so intensely. It is truly better to have loved…!
Lost And Found In The Music
Happy holidays to you all! And an honest hope for a happy, healthy, and peaceful 2024!
I woke up Christmas morning with the realization that I had, in deed, been anxious about the coming holiday. I thought I was done with this level of anxiety subsequent to my recent travels and family events. Not so. I didn’t understand why my blood pressure was still higher than normal nor why I found it difficult to sit still during the day or go to sleep at night.
Sure. I know the tendencies of those who grieve to be affected by holidays and anniversaries. I’ve lived it. But I thought I was really doing better. Didn’t I just write about it? So what gives!?
Doesn’t matter. It is so. I cried. No, I wailed. Over and over as the morning passed and the rain (not snow) continued to fall, and the wind continued to blow.
The well-wishes started to light up my phone. “Thinking of you.” “Merry Christmas, Keith.” “Hope your day goes well.” All nice, warm sentiments that I appreciated very much. Knowing that family and friends understood my sorrow forced smiles in the midst of sadness.
By late morning, though, not knowing what to do or how to create a happier day, I found that I wanted to play music. I’ve been practicing with my Alvarez Yairi recently, so I unsheathed it from its case, tuned it, and began to play. First were songs for and about Pam. After all, it is she who I honor on Christmas more that any deity. For she loved the celebration of the holidays so.
So I played. And I played some more. I was lost in my music. Not necessarily playing well. I hadn’t been practicing much lately. It didn’t matter. I was in touch with the sound and the origins of the lyrics that meant so much to me, and that I did write them. I played for an hour. And then another. Taking breaks to rest my hands and voice, wetting my whistle, eating snacks.
From my travels: Lolo Pass, I Look Away, Parkersburg.
Family; loves and losses: When Comes the Time, Rae J, Tell Elizabeth I Love Her, Sarah’s Song.
And, of course, my Pamie Sue: She Sleeps, The Song I Never Wrote For You, Our Lives In Love, Anything To Please.
And many, many more. Covers of Cat Stevens, The Moody Blues, Simon and Garfunkel.
On I played throughout the day. It felt good. I felt better. And I remembered the commitment I made to Pam, shortly after her death, to pursue the music. To follow through with the dream. To give to others that which I have to give. Not amazing, artistic greeting cards as was Pam’s gift, but my music, both old and new. To share myself and those in my life with anyone who will listen and relate, or just enjoy the sound.
The more I played, the more I realized that I am fulfilling that dream. Music is the one constant, the one calming, honest, and true gift that I have to hold onto as I learn to live on my own, without my Pam. And it is due to her that I have been free to write and play for the past almost 30 years. She has been my muse, my inspiration, my collaborator, and my fan.
Now I prepare for the next chapter in what has become the life of a singer songwriter – my life. I have been looking forward to it for a very long time. I have thirteen new, unrecorded, original songs and 6-8 covers that I hope to record over the next few months. Hopefully, I’ll be done by Spring, ready to “hit the road” armed with hours of live music to share. And there are several completed songs that I have yet to practice, to prepare them for performance and recording. Several additional in-progress songs also await in the fringes of my repertoire. I hope I get to them all.
Finding my voice in my music brings me joy and satisfaction. I celebrate my life with Pam, and without her. Being lost in the music is a good thing. I find solace and comfort, able to forget the anxiety of loss during the holidays, and of the challenges that lie ahead. At least for a while, while I play.
Maybe you, too, may find some comfort or consolation. Lost and found in the music.
Still it is difficult to grasp that she is gone.
Gains and Losses
Two Steps Forward
Yeah, I guess this is life! Recently made notes to myself reveal a general improvement in my psychological wellbeing. Such gains are tempered by yet another loss, though only a partial one.
I began to notice subtle changes as I prepared for and experienced transitioning Mom to memory care. I realized early this week that I had been gone every weekend, and over half of the weeks, from Thanksgiving with family in Ankeny, through last weekend with family in MN. I found myself feeling comfortable at home just before the travels began.
Last weekend I was visiting daughters and families in Minnesota. This has been an emotionally challenging trip since Pam’s passing. They are all great and I love them and seeing them in their homes, living their lives. Anticipating this weekend I realized that I wasn’t stressed over possible challenging emotions. Rather, I was just looking forward to being with them. Major – positive – change!
I had lunch with (fellow subscriber) Linda on my way to MN. Linda and I share very similar caregiver experiences (Dave passed 18 months before Pam). And though we continue to compare “notes” about our experiences, we spent at least as much time just talking about family and travels. In other words, we were focused on living our lives now rather than revisiting the past.
I am aware that I am feeling less guilty for feeling good. For the longest time feeling good ultimately led to another round of sadness/depression. How could I betray Pam by not being miserable?! But I actually feel happy at times. I am beginning to enjoy my life as a retiree. It feels good to feel alive again – to trust myself again.
None of these feelings are betrayals. I think of Pam constantly. Everything I do and see reminds me of her. I miss her intensely and tell her so. When I see a reminder, especially of who she was and how she lived life, I tell her that I love her. Though thinking and saying this is probably about me and not her, It is the truth non-the-less. This is what she wanted for me.
One Step Back
On the other hand, leaving Atlanta I knew that I wouldn’t be able to talk with Mom on a regular basis (we chose not to give her a phone, at least for now). I realized this week the sense of loss, in some ways similar to my feelings of losing Pam.
Anticipating such an emotional event does not lessen the impact when it comes to pass. Just like with Pam, I could hardly let my emotions interfere with what I had to do, as a caregiver for Pam, and as a businessman for moving our Mother. The aftermath still includes some management, but there is much more time to feel. Now these new feelings of loss are mixed with those I already had.
Some of my gains are now back in the shadows. I can see them, yet they are clouded by renewed sadness. I know good feelings will return, but I struggle to grab onto them again.
Another cloud looms on the horizon. I’ve seen this cloud before when it was clear that Pam would not survive her disease for long. Mother will be 99 years old in just over a week. She has moderate dementia, but still realizes that there is not much left to live for. She also has stamina! The end will ultimately come. Probably sooner than later.
As I navigate gains and losses, I am sure there will be plenty of both to come for the rest of my life. This is something important that I have learned. Every one is a new chapter that I am ready and willing to live. I still want to – live!
Last week was the 17-month anniversary of Pam’s passing. It was the Tuesday after returning from Atlanta. I was still catching up on – well – everything from the trip. It wasn’t until this past weekend that I realized that the day went by without my acknowledging it. It was the first time. Next month will be a more significant milestone. Will I remember? Probably. Then, on to two years, and beyond. A step at a time.